I haven’t been active on here for about 4 years, but I have a question to ask and would be grateful for your thoughts.
I have had severe TN since June. I am on oxcarbazepine and pregabalin, which have finally managed the pain. In October I saw a neurosurgeon who confirmed I had bilateral TN, but he wanted me to have an MRI to confirm. It confirmed what he thought and said it is probably due to MS, as there was no evidence of obstruction to the nerve.
In june 2011 I was diagnosed with Optic Neuritis following a visit to a Neuro and a MRI. I was diagnosed with CIS Syndrome and would need another relapse to confirm MS.
I still have not been diagnosed with MS although I have all the symptoms: balance issues, pins and needles, fatigue, legs that feel like lead, cognitive issues etc.
I am seeing my Neuro again on Tuesday.
Has anyone been diagnosed with MS following TN? I don’t think I will, but I am intrigued that my Neuro has asked to see me, as he wrote to me in January saying that unless I have had a significant clinical episode, he did not want to see me!