Hi folks So things started last Wednesday. Removing from a relapse, felt very very tired all afternoon and then oddly my taste changed that evening. Couldn’t really taste food/drink fully. Come Thursday, woke up and felt slightly dizzy. My husband took me to see my MS Nurse at the rapid clinic. She thought possibly I’d overdone things following relapse and taken a step back. Also questioned if I had a UTI (I have problems passing urine). SO…sent home, signed off work for a further 4 weeks (only went back on a phased return the previous week), urine sample given and given sickness/dizziness tablets from my GP. Friday, all change. Constantly being sick, couldn’t stand, no balance, shaking, couldn’t even keep water down. After three days of what felt like hell, two emergency dr visits, lots of panic attack feelings on my part, I was diagnosed with Labrynthitis. My MS Nurse said could be MS related as it’s nerve connected. I’m on anti-hystamines and feel loads better. Still spacey at times and need to walk/turn my head realllllly slowly. My taste just hasn’t returned yet. It feels like my gums could be slightly numb in places. I’ve lost about 10lb since Thursday! Has anyone had it/or similar? I wouldn’t wish it on anyone 
I was so scared and genuine fear is horrible. Thanks L x
hiya
hope u feel better soon. yes i have had similar-lost 5 stone. i have probs with ears-no reason found so guess/assume its nerves in ears…
ellie
I have had a relapse like this, i completely lost all balance ,i tried standing and just fell back,
had double vision,and couldnt even lift my head from the pillow for a week,without being sick,i felt like i was dying,and at the time wish i could have i felt that ill. i lost 4 stone in a few months as i couldnt eat at all,i used to force a slice of toast a day down me.hope you feel better soon.
J x
Hi i had a long drawn out episode a few years ago with very similar symptoms. I thought i had a stomach bug for a week. Eventually i went to see g.p because i couldnt keep water down. In hospital they said it was a long drawn out episide of ms. The sickness disappeared but i had to have steroids. The taste of food had changed and for quite a few weeks i tended to go for foods with strong flavours. This may of been as part of my tongue was numb or as my relapse effected my senses it might of been that. I hadnt long had a baby at the time so looking back i was fortunate to have enough weight to loose however as my weight plummeted so much that i was really worried that if the sickness returned i didnt have any body weight to loose so i increased my calorie intake just to give me extra weight! During this time i was told the sickness/balance problems/sensory problems were everything from a gastric problem, ear infection had lots of hearing tests (if i remember right i think i got diagnosed with labrynthitis ) and it took two mri and a very good neurologist who confirmed it was a relapse. I took cyclizine an anti sickness drug. Also had vertigo like symptoms as you describe when turning my head. They all settled down. I couldnt find many people who had suffered from sickness during a relapse at the time of my relapse so im not sure how common it is but my neurologist confirmed that this was a symptom of m.s. Hope your symptoms improve soon. Speak to someone about your panic attacks as i found that i was scared and stressed about my symptoms which was making my symptoms worse.
Thanks all, it’s reassuring to hear I’m not alone in this. Redruth, my things sound pretty identical to yours. My tongue is also numb at the moment. I am trying stronger flavoured foods now, it’s just so rubbish when you can’t taste things fully isn’t it? My weight is stable now as I’m eating bits, I had the weight to lose anyway
Ha…lost half the post. I was saying as well about how right you are in not panicking. I had real moments where I thought I was dying. I’m better now and can be more realistic about it all (doing CBT). I still have some fear about it getting that bad again. I’m also just shocked at how much MS has impacted on me. Only dx in Dec, had optic neuritis in March, November before. Bad back nerve pain, fatigue etc. Its a huge learning curve as I had no Idea MS relapses could cause this type of thing. Thankyou again. It’s so nice to ‘chat’ to people that get it xx
Hi. It is so scary. Last week was a bad week for me and it really made me scared about my future but as things settle im back to my normal positive’ish self!. I am so glad i did cbt (which i actually did for post natal depression) but its helped with my thinking for m.s. I spoke to ms nurse on tuesday about my tongue and he recommended eating natural yoghurt (very cold) as he said it helps him (he has m.s), ive not tried it yet but he told me that maybe eating lots of lolly pops wasnt good for my teeth!. I hope things settle for you for a looooooong while x
I shall have to give that a go
Mmmm it keeps chopping my posts! Thanks again. It’s worth a try! Must be helpful that he really understands MS. Hope you settle as well. I’m totally bored of daytime TV! Ha ha x
Im no good at watching daytime t.v. I look at it whilst thinking of all the things i should, could, want to do as a result im not watching only looking at a screen lol. My knowledge of m.s is pretty sparse. I decided when i got diagnosed to only look at things as and when i needed to as there are sooooooo many symptoms. A friend of mine only got diagnosed about a month ago (bizzarely 3 people from the same company have been diagnosed along with me in the past 4 yrs theres only 45 people there and 10 females!) anyway i digress… She came to visit me last week and she was like the oracle!. I suppose we all accept our diagnosis differently she wants to know what to expect…i dont want to know.
Yeah I’m the same. I think I would have ‘the fear’ if I read too much. I guess everyone’s different. I keep waking up hoping that I don’t need tablets and my mouth/taste is better. Today is…not that day. Maybe tomorrow 
That’s pretty strange about how many people have MS in the company. I’m the first one with “something like this” (my HR manager said), so I think I scare them. Ha ha. They are fab at the moment with me, I’m lucky. x