totally frustrated with drs

Hi. I am new here and have to admit I really don’t know what is wrong with me. Back in January I had an episode where I had an awful headache, dizziness and confusion. My GP referred meto A&E where I was told I may have had a lacunar stroke. I was not admitted as there were no beds available and I am my husbands carer so t 10 pa the Dr said I could go home. A few days later I was called back for a head ct scan and also had a dollar scan of my neck and an ecg. I then saw a consultant who said nothing had shown up on the ct and referred me for an MRI. This showed up a couple of lesions on my brain. Since then I have had a tilt table test and some OT assessments and seen a physio.

I get tired very quickly. I have an almost permanent headache to varying degrees and am always dizzy. Sometimes es worse than others. I have tingling in my finger tips which can go down through my fingers and I now have tingling on the soles of my feet which sometimes creep up to my knees. I get a numbness in my right forearm and my grip is not always good. I have started getting tingling all down my back and I get the most tremendous ache type pain in the back of my neck. My balance is not good, my legs feel wobbly most of the time and although I haven’t fallen over I have to put my hand out to steady myself. My consultant won’t tell me anything. All I know is that I am still being treated as if I have had a stroke but I don’t tick all the boxes for a stroke and it may be something else but they are not saying. Did I mention my memory is shot away too. Is it worth having any further tests because I am made to feel I am wasting everyone’s time :frowning:

hi leyton

neurological problems are difficult to diagnose because they sort of blend into each other.

carry on seeing your neuro.

maybe keep a diary of what happens and when because diagnosis is based on spoken history and MRI

carole x

I haven’t been referred to a neurologist. The consultant I see specialises in strokes .

Speak to your Neuro about this http://aps-support.org.uk/ it does show lesions and mimics MS symptoms.

George

It is a huge worry for you, particularly as you are your husbands carer.

Have you got support from family and friends, who can help out just now?

Just wondering, are you in UK, as some of your terminology is unusual?

pollsx