I’ve had a couple of weeks, where I felt reasonably well but today I’m back to feeling awful. I saw a nurosurgeon in March who said I needed referring urgently to a neurologist this was, after he did a few tests, and said I clearly had long tract signalling issues, I asked what causes, that ms and he said he couldn’t say it could be a, number of things, and is, caused when the brains irrated. I’ve been referred on the NHS but God knows how long the waiting list is to be seen. I’m so fed up. I’ve constant head ache it’s, like my whole head pulsates, I’ve kneck paine,numb thigh, electric shocks in both arms, then random places, my hand, foot, side, face, my legs feel so heavy like I drag them, my left side of my face feels different to my right, I’ve horrendous, brain fog, I loose words, stutter. Today it’s all started up again after feeling OK for a couple of weeks. I’m debating going private but is, it worth it I’ve no Insurance and 3 years ago I went private and was told and I quote you’re not dead yet so take that as a win by the neurologist so it was a, waste of 300 quid he just didn’t listen. I guess I’ll just have to plod on. 3 years trying to get answers decades of on off symptoms that got worse these past 3 years. Moan over. Just feeling down today.
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The lovely neurologist three years ago was right but not helpful, wasn’t he/she? Never mind. You have the neurosurgeon’s opinion now, and most doctors pay more attention to medics than they do to civilians, alas, so you’ll probably hear a different tune this time. …OK, ignore that cynical comment: there is a lot more information to go on now, and when there’s new information, doctors take it into account because that’s how it works. If you can spare it, I would suggest you get yourself a private referral if you can.
The neurologist was a man in his 80s was very uninterested and basically I feel just wanted his 300 quid fee.