Im truly really extremely sorry if you felt I was trying to scam you which wasnt I intended to do.All I wanted was some advice and help which you given me and my family which has helped us.I just want the negative comments to stop and for us to play nice together.We are all in the same boat with this horrible disease MS either havin it or caring for someone who as it.Cant we put it behind us and have a fresh start.My partner really needs you guys and gals on this you know how it feels when MS is makin life really hard for you to live ur life to the max my gf experience that too thats why sheneeds you to play nice and ssupport each other.I understand you dont like me but what reason have you got to be nasty to her or not to like her.
Lol I love it and so very true!
Having read the awful comments by Tigermoon on other threads, Im now sure these too are trolls. Not very clever ones either.
Interesting to see that you live in Bowthorpe, Norwich. Chapel break or Cloverhill ? Norwich provides fairly good services for the disabled and they have an ms society which would advise you on a lot of the problems you seem to having. Car link is a voluntary run transport service in Norfolk. They are fairly cheap, why not ask your gp for their number ?
You MAY ( and I stress may ) be entitled to hospital transport if you have severe mobility problems but it’s unlikely that you would be able to take your partner with you in the hospital car.
What’s the first name of your ms nurse? Wonder if you got the same one as me, if so you’re lucky as she’s lovely.
Dunno about trolls anon as Bowthorpe is a genuine suburb of Norwich and it’s unusual for someone to make up or know a suburb??? Jury’s out on that one with me.
Hello fudgey tried to get transport but don’t quality as not wheelchair bound! Kinda freaky how do you know I live in bowthorpe? =-O my Nero nurse WAS michelle green now it’s bronny at the N&N god I’m so glad I have found you or you me I was feeling lost! My consultant was Dr Dick but he was horrible so I changed my consultant to Dr Shields he is absolutely brilliant!
Forgive me I’m having a stupid moment just checked my profile out da lol I even forgot that! Wonder if we have met?
Oh and the little center on witard rd I think, closed due to lack of room that’s where I did the course getting to grips with ms. I know they have another center but not yet been. Is Diane still the manager?
[quote=“Polar Bear”] Hello, I have read your full post and can understand how everyone became wound up and upset, which I think is a fair comment. I chose to stay out of it. I wish all the best to you and your family. Let’s move on from that… I posted this the other day, but will post it again Recipe for a real high: A pinch of: tolerance, patience, caring, kindness and courtesy. Mix with lots of smiles, let simmer in your daily lives All the best [/quote] Bless your heart Polar Bear.Enough anon we have all moved on now lol times to be in thd present not the past.
;HaHa Tammy, yes sadly I’m not telepathic, got it from your profile, I did have Bronny but then got switched over to Debbie for some reason but that was fine and she’s so nice. I’m under Dr Mamutse but have seen dr Shields when I was first having symptoms and he was the one who suggested MS. I burst into tears in front of him so I felt a bit of a fool.
Mmmm I know what you mean about dr Dick, Had to see him on an emergency involving spasms and I think he’s the "old school " type of consultant which probably explains his attitude.
Maybe we’ve been sitting in the Neurology outpatients at the same time!!! I’m on rebif so don’t have to go to hospital for treatment. I just see Debbie every 3 months and I;m down to see Dr. Mamutse again next August.
I didn’t go on the ms course as I couldn’t commit to all the dates they gave.
I wish you could get to the hospital as missing that Tysabri isn’t a good thing… The transport office at the hospital will have a list of voluntary car schemes in your area and your gp should also have those details. They are cheaper than taxis.
I’ve stayed out of this tarradiddlel until now and I half think I will delete this before I post but here goes……
TigerMoon and Tammy are young – in their 20s and frankly that explains it all.
If we assume that they are exactly what they purport – MS sufferer and carer with a young child and money worries – little more than kids themselves then it all becomes understandable.
I’m not condoning what has happened – but desperation makes us all do daft things. I was a social worker for years and saw first hand the measures people go to in an attempt to give their children a Christmas.
Many people on these boards are very well educated (lots of graduates) and I don’t want to be insulting but I suspect that this is not the case here. Problem solving skills whilst second nature to some are a struggle to others. What seems obvious to one poster will not have occurred to another. It is also very difficult not to respond when people post critical replies (and I speak from experience) but it is damn near impossible when you are young! This would have slipped onto page 5 now if let alone.
I have a piece of advice for Tammy and Tigermoon.
If you are really serious about using this board for advice and support – change your usernames. The internet offers a wonderful cloak of anonymity. I suspect that every time some people see a post from “Tigermoon” they will be fingers poised to weigh in – in the worst possible way.
Give yourselves a fresh start. Change your names to something new and post simple questions. You will find that the amount of knowledge on here is tremendous. For example if you had posted a question about how to solve your hospital transport problem you would have had 4 or 5 avenues to explore and possibly even an answer.
I will be more than happy to help in any way I can but beyond this post – into the mish mosh I will not go.
Well said Wendels…
Lol fudge B-) Debbie is nice she worked very close to Michelle. Dr Dickerson is due to retire so your probably right there! I know how important it is as I’m now suffering because of missing them 2 infusions (my fault) I have asked about transport but as I’m not in need yet of a stick or chair I don’t qualify! I use my daughters pushchair I know when she can walk and dosnt need it I’ll have to think about something then. I’m normally east rumatolagy < spelling =-O Talking about the course I relapsed half way in to it!
Wendels that was a lovely understanding message. Yes there are many well educated people on here and sadly I’m not 1 of them. I have 65 places in care and never stayed in a school long enough. I was put in care when I was 3 then moved in rented on my own when I was 15. I never had any love, guidance or support and there are times when I’m desperate. Dan was kinda in the same boat.
*DICK. sorry fudgy my phone is on predictive
Just wanna wish you a happy christmas.
luv Pollyxx
And merry christmas from me too Lynn x
Try and have a lovely, peaceful christmas Tammy.
Noreen xxx
good advice from wendels, have a fresh start with new names. it really is the best place for advice from the real MS experts… us, the MSers…
take care, all the best for christmas, see you back soon,
wendy x
Really hope you have a happy christmas and a Very Happy New Year.
Shazzie x
You lot are so lovely and I’m glad I’m a member! I wish you all a happy Xmas and try not to over do things on Xmas day, prep tomorrow evening then it’s not too hard on the day!!! I only found that out last year you guys probably know it all. Once again thanks for your kind words