There is hope!

The last time I was on this forum I was in need of some hope and now I would like to share my story.

I was diagnosed with RRMS in June 2012 after quite a short period of symptoms. Following 2 MRI scans the consultant rang to confirm the diagnosis. I was shocked for a few days and met the consultant to ask some of the many questions I had. One of which was ‘Will I ever feel better than I do today?’ He was absolutely positive that I would. At the time I was suffereing with what I now know was anxiety, not sleeping or eating, feeling drained etc. Over the following weeks I appeared to relapse again (if I ever came out of the first one!) My symptoms kept getting worse and worse and I felt that I was only ever going to be in relapse. I had leg weakness, limited movement, pins and needeles, bladder dysfunction, fatigue, difficulty in walking - you name it, I felt it! Remission felt a very long way off.

After a routine appointment with my consultant in August I had a course of IV steroids, which began to work in 24 hours. I was amazed by the improvements and only wished I’d asked for the steroids earlier. I saw my new consultant in September. I was expecting to say ‘Next time I relapse I’ll have the steroids straight away - see you in 6 months’ However he was surprised by how severe my symptoms had been through the summer and recommended that I start on DMD’s. He gave me the choice of 2 and told me to go away and think about it.

I was surprised by his decision as I thought I would have to have more relapses before I was offered these and didn’t feel mentally prepared. The nurse showed me both sorts of injections and I came home feeling overwhelmed. In October, following a very stressful few weeks at work and a busy time at home I had a couple of days with some very mild symptoms. This was enough to scare me into starting the DMD treatment. I chose Rebif, using the Rebismart machine. I began the injections at the beginning of November. I have been very fortunate and had no terrible side effects. I take the injection at night and have some paracetamol before I go to bed. I get some redness around the injection site but nothing to worry about.

I have now been symptom free since the beginning of September, except for a few minor sensations in October. I have celebrated both of my children’s birthday’s, had a lovely family christmas, been on holiday, starting swimming lessons with my baby girl and do everything I did before. I thought it was the end of the world when I was diagnosed and that I would never be able to enjoy life with my family. But, if anything, life is better. I appreciate being well and make the most of it. I am always aware that I could relapse, but do what I want while I can!

When I was diagnosed I needed to hear that it might be alright. I can now say, at the moment, it is better than alright and I have the support and knowldge to cope when I do relapse. I hope this helps someone to see past a diagnosis, to a better time.

Good to hear that you are doing better. I hope Rebif works really well for you :slight_smile:

Karen x

What a positive post sallyedm! It is so great to hear that you are feeling better and more confident; I hope that the rebif and the postivity continue.

Rae

Oh what a lovely post!

It has to help those who are not yet diagnosed or thinking of going on DMDs.

We need posts like this, to save any newbies from thinking having MS is bound to be the end of the world!

yes, I know this may sound claptrap to anyone who is really struggling with all sorts of things.

To those peole, i say please hang on in there.

Keep coming on here for advice and support and hopoefully better times will come.

luv Pollx

This is an excellent post.

Im with the specialist next week to discuss treatment, and i have chosen rebif as my treatment, but to read the above makes it all alot easier for me to digest.

Its very rare you hear praise for medication on forums, as its only usually the cons.

Thanks for this