I need some help everyone, i have got myself in a muddle, not sure if i’m progressing or if this is just part of rrms, or if i’m freaking out unnecessarily.
Diagnosed in 2013 rrms after lesions found on brain stem and cerrebellum and awful relapses, rendering me completly useless. Made a good recovery and almost got back to my ‘normal’ self. Had a couple of mild-ish relapses since then, nothing too scary.
Have been doing really well symptom wise, had a bit of nerve pain and weird sensations but on the whole pretty ok. Started on rebif in July, seems to be going ok, a few short lived side-effects.
However i seem to have lots of new symptoms. I mentioned them to my nurse and she was concerned that i had so many so early after dx. Suggested i might need to move to another dmd, in her words “because of your age (29)”
The symptoms include: severly reduced walking stamina (2 mins and i need a rest), cognitive issues, tremmors, dizziness, numbness in arms and legs, persistant nerve pains, burning sensations all over, fatigue, mood swings and unbeliveable headaches.
I am seeing my neuro soon, nurse said to tell him all of this, but no advice on what to do in the interim, it was not discussed whether this is a relapse, the rebif or just life with MS. It was her concern that has really freaked me out i think. I’m on Gabbapentin and take vit d3 and b12 try and excersise where i can (getting too hard) and eat right (most of the time - i’m only human!)
I don’t know what i’m meant to do - feeling things are out of my control and don’t know where this disease is taking me. Finding it really hard going at the moment - especially with the boys off school. Any words of logic, reason and support welcomed, thanks.