I have read a lot of threads on this forum over the past couple of years. Most of them I think are upbeat and full of hope for the future. Like everyone I reckon it’s good to have place to come where you can whinge and/or celebrate without judgement.
There are also a lot of threads along the lines of “vegan diet/vegetarian diet - Game changer”. Some extolling the virtues of different kinds of diet to help with the symptoms. Some recommending different types of treatment etc etc. I understand all of these and it makes me very happy to think that some changes in lifestyle can help some people feel so much better.
However - I find myself being very sceptical when I read all of these. I’m not saying at all that people should not try these if they feel the need - each to their own. I do wonder though if the disease in all these people would still have improved at that particular time whether or not they had changed their lifestyle. I have seen a post on facebook from a woman who has lived almost symptom free for many years and is quite possibly making a pretty penny from ‘selling’ her lifestyle to those of us who want to give it a go.
Here’s the rub. I lived symptom free for about 35 years. I didn’t change anything about my lifestyle. I forgot I was supposed to have the disease to be honest. I can’t patent my approach and encourage others to live the way I did because nothing about my lifestyle changed. I was just very VERY lucky.
I am SO pleased for anyone who feels that the changes they have made are contributing to a better outcome for them, but for those who try anything and everything to make a difference to this disease that it doesn’t work for - it can only contribute to a sense of failure and I for one already felt that when I was diagnosed.
What works for one will not necessarily work for another. Try things if you wish, but encouraging other people to do what you did because it worked for you may not be the best way to go. I’m not about to start changing my lifestyle beyond what has changed already. I love my food and I will continue to love everything that passes my lips because life is already too damn short to start cutting out the things I love.
Are these diets/supplements etc etc going to make a difference - we will never know I guess - MS is a sneaky little bugger and i’m of the opinion that it will do what it wants, when it wants and it sticks two fingers up to all of us all the time.
Live your life the way you want to and be as happy as you can be is my philosophy.