Since Saturday I’ve been unable to post on the original and wrongly spelt “Alternative tharapies thread”.
Each post has simply dissapeared into the ether along with a note that it has been passed along for moderation.
Well after a couple of days nothing has appeared so I figure there’s an issue.
The thread isn’t locked and no upleasantness has occured therefore the only conclusion you can arrive at is content is being reviewed/editted and potentially censored. If that’s how it works around here then that’s fine - but please tell me why you’ve taken this stance and who makes the decision on what is and what isn’t acceptable content on the forum.
If it’s a simply case of the management preferring I didn’t post - then say so please, silent censorship is a little insidious.
Shall we start afresh?
Over the years as my wife has battled MS, she’s been through the decisions of many of the posters on this forum.
Each time any new symptom appeared, no matter how unrelated it may seem to MS it was automatically put down to MS. Back pain, neck pain, leg pain and not once did we stop and consider that it might be something else causing it.
You grow up taught to rely so completely on the specialists providing diagnosis, they are Doctors and Specialists so they must know exactly what’s wrong with us!
There was a single article I read that lead us down the path of treatment my wife is on now - this one:-
It was like a eureka moment, not becasue we figured we’d found a “cure” but becasue it simply made us think differently about the physical problems associated with my wife’s illness.
What if the specialists understood so little about MS that they were wrongly attributing symptoms as MS? It’s not a daft conclusion to arrive at when you actually completely understand how little is understood about the condition at all.
So we started treatment and it helps tremendously with certain debilitating symptoms.
But this is the important bit. Do we think it’s treating MS? I’m not so sure it is. I think it’s treating a TMJ disorder in my wife that presented symptoms the same as or interpreted as MS.
That leads to the following possible questions:-
Was my wife misdiagnosed with MS when what she actually had/has is a TMJ disorder?
Is there any relationship of TMJ disorders with MS or do they coincidentally generate similar symptoms?
What is MS if a TMJ can generate the same symptoms?
What I’m not suggesting is this is the answer for everyone, I’m not suggesting it’s some wonder cure for MS but the results my wife has had with this treatment are screaming to be studied. That’s what I’m after - people to study these connections.
Lets not assume (because it is an assumtion) that MS is singly and autoimmune problem.
But we always have a chicken and egg situation with NICE, they want a study under scientific conditions that there is something to it, that would be great please can we arrange to fund the study? Well, say NICE, there’s no study providing evidence that would lead us to want to fund a study! Arrrrghhh!
I hope Lord Saatchi’s Medical Innovations Bill goes someway to helping the brick wall that non drug realated treatments find themselves constantly coming up against.