I was once where you are now. Believe me when I tell you that you are over the worse.
Its an unnecessary struggle and fight to get what you are entitled to. If you dont ask the right people you don`t get. It then feels like there is no help available because it involves finance to your benefit.
Well, after lots of research and questions Ive now got what Im entitled to and the pressure of finance has been removed.
I strongly believe that worsening symptoms are caused by financial stress and it should`nt be that way.
Unfortunately your`e on your own when it comes down to finance.
Sorry to hear you’re struggling, do you have friends or family members you can talk to? If you need to talk you can call The Samaritans on 116 213 or email jo@samaritans.org.
Hi Glove You’re not on your own, most of us have been where you’re at. Please seek help, whether it’s the Samaritans or your GP. MS nurse may be able to help your claim for benefits. You won’t get wealthy on benefits but you can pay bills and they lead to other help eg council tax or housing benefit. Are you still with a union after leaving work as mine helped me claim successfully. Don’t give up, your situation isn’t unique but there is help available. Take care Cath
Thank you for the message. Samaritans seems like a bridge too far but probably because my usual inner strength has been ravaged by this unforgiving disease. Will do my best.
Your advice is much appreciated and the safety in numbers ethos that comes through it.
Yes at the moment I still am with the union but had started to think about maybe cancelling. I wasn’t aware that they offered other help if not employed. Have not been with them long so new to it.
Sometimes it seems like the walls are too high. The testing of our character and resilience is unfair. Take whatever help you can. Don’t be afraid to ask. A lot of areas have groups to help people with disabilities. Do you have a local MS society branch? I’ve had a relationship breakdown with unreasonable demands put on me but I’m still kicking. It was a long road and I’m still on it.
Hi again Giova. I hope you’re feeling a bit better now. My union had a financial department and they were fantastic. I got refused benefits and was on the verge of losing my house when someone recommended that I contact them and they were really helpful. They talked me through the application process and gave me their details to put on the forms, letting me know that if it went to appeal, they would go with me. Within a couple of weeks I heard back from the benefits agency, they’d written to the hospital where I had been treated and I got even higher rates than I expected. It’s worth a try, they have much more experience in claiming than anyone.
I have continued my union membership, as I’m medically retired it only costs me £10 a year and if I ever need help again they’ll be there for me. Speak to them, they may have a similar scheme.