Money ?

Everyday living
1

Not sure if I should talk about it here. My main problem apart from PPMS is finance. Not a problem when working but now Im at home 24-7 and taken a big drop in money coming in.. Yes I get entitled benefits but that just covers food and bills. I have nothing left for other expenses. Is it the same for everyone with MS or am I missing something. Basically, Im just surviving and not living. Yes it is depressing not being able to afford a Mothers Day present.

I would work if I could find something worthwhile. I am a Carpenter but MS prevents me doing the job.

Any advice is more than welcome.

2

Try Citizens Advice for guidance. I’m assuming that you have ESA and have tried for PIP.

Jan x

3

I get ESA and in the support group. I did try for PIP but did`nt come close to getting it.

4

Hello,I too have ppms and when I first put in for DLA I was turned down,I was told about welfare rights and made an appointment when they reviewed my DLA application I was awarded higher rate mobility.Over the years my ms had got worse so I put in for the daily living now this was with PIP and have been awarded higher rate for this.I think the key to pip is explaining how your ms condition effects you.I would try to get as much supporting info as possible i.e. Care plan and letter of support from your ms nurse or any other professional that is dealing with you.I did join the benefits and work website which has info on how to fill PIP forms in.I think the amount of people who appeal their decision is over 60% in your favour.I would definitely think about re applying especially as you have ppms.

Good Luck.

5

Apart from checking that you are in fact getting everything you could be entitled to, there’s really not much else that can be suggested.

It’s utter crap living on benefits. I know that some of the news(?)papers proclaim loudly that people on benefits are all living the high life on these princely sums of money, but as you now know, that’s just not true.

And just imagine if you weren’t in the Support group for ESA Scudger? It would be even worse.

I’m really sorry that there’s so little hope for increasing your income.

Sue

1 Like
6

I have a friend who is in ESA support Group and she sells things online (gifts and children’s stuff), the permitted work allowed of £86 a month. I know it’s not much money but she likes to think of it as having her own business.

7

Ill think of something. I always do. Its my problem.

The benefits system is a joke. No wonder Im ill. Thats on top of the MS.