Hi there y’all, this is the first time I’ve written on this forum. I’ve had RRMS for 19 years now, and all things considered, I’m not doing too badly. I had a relapse 2 weeks ago ( had steroids and feeling much better now) but I was just SO exhausted and unable to think straight. I felt like I was lurching through the day just trying to make it to the end. I have a 6 year old and an 8 year old who will always be my top priority, so by the time I’d made sure they were fed, clothed, taken to school etc, I had NOTHING left for my work! I’m a SQL developer (database stuff) and am extremely lucky to have a job 5 minutes from home. But I felt so guilty / frustrated / angry / lame because my brain simply wouldn’t work. I ended up taking 3 days off and just sleeping.
I told my HR department, and they were very sympathetic, but I still have this underlying feeling of being a let down! If I were to tell people I had to take 3 days off because I was “tired”, I think they would just roll their eyes and think “join the club”. But it’s such a different, all consuming tired.
I just wanted to get it off my chest really. I’m doing okay today, but I really don’t know how much longer I’m going to be of any use in my job! But gotta pay the bills. Has anybody else reached this point