The Copaxone don't work...

Everyday living
1

After 3 months of Copaxone injections I’ve had to come off it as in the space of 3 weeks I had 2 bad reaction the second felt like a near death experience! Anyone else had a bad reaction and what alternative did you go for?

2

hi louie

i havent had a near death experience but i hate doing these daily jabs.

have you informed the connections team? they take these side effects very seriously and it may help future users.

carole x

3

Hi Louie, sorry to hear about your frightening experience with Copaxone. I just wondered what kind of reaction it was? I have been on Copaxone for 2 months. I once phoned the Connections team and found the nurse I spoke to was really helpful. Hope you are able to get some help soon. Take care, RedShoes

4

The reaction I got felt like a rush to my head and my face was beet root red and slightly swollen I then couldn’t stop shivering for the next couple of hours coupled with a feeling of nausea. MS nurse said this is an unusual reaction but not completely rare. She has now suggested rebif so I’m still deciding.

5

Saying it was akin to a near death experience was something of an exaggeration but I haven’t felt that Ill before.

6

Yep, Louiec77, you had the IPIR which Copaxone can cause and which my neuro warned me about. I had 3 episodes in as many months and am now on Rebif.

It’s a shame because I actually preferred the copaxone jabs to the Rebif. I’m sure copaxone needles are thinner than Rebif ones. Rebif still hurts me like hell even10 months down the line and if I take pain killers a little bit later than an hour after jab I still get bad Flu like symptoms.

I’m also noticing my mood changing, I cry at everything and get very irrational anxiety over the silliest little things ( or so my hubby says ). I’ve had one bad relapse whilst on Rebif but that doesn’t mean the Rebif isn’t working but I do really hate these particular jabs.

I really really hope if you choose Rebif you get on better than me and I know there are a lot of Rebif users who are very happy with it.

Saw my ms nurse and she is going to chat to my neuro about Gilenya.

Take care

Anne-Marie