Tecfidera feedback

Hi everyone. Hope you are doing ok

I’m after a feedback from anyone that’s on Tecfidera or had been in the past. I have been on it for 2,5 years now. Since then, I’ve had what seemed to be 2 relapses. My thinking suggests that the medication is not really doing the job as it is suppose to prolong the time between relapses? Any info hugely appreciated.

Thank you


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Hi Marlena, I’ve been on Tec for over 5 years. In that time, i have had no relapses and every annual MRI has been clear, so not surprisingly i would highly recommend it. My Lympho count dipped one time, but 12 weeks later at next check it had bounced back, so all good.

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Different drug (Avonex in my case) but it worked and then it didn’t. If I had my time again, I would’ve been much more proactive about saying look this isn’t working - I need something stronger. By the time I did switch up, quite a lot of permanent damage had been done. So my advice would be: don’t be too polite about it.

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