Hello everyone.
This is my first post on here. I just wanted to ask whether anybody has had any experience of Vumerity.
I took Tecfidera for nearly a decade until I was suddenly changed to a generic version and could not get on with it at all and had to stop. I have now been put on Vumerity but do not know what to make of it. There are a lot of pills involved after Tecfidera just needing two a day, this is four! I did not feel too bad on the half dose but did not feel good changing to the full dose. Am trying one month supply at a time but do not know whether this is going to be manageable. I felt really drugged-out on full dose. Does it become easier with time or has nobody been on it long enough to say? The other option is Kesimpta. These are such big decisions and such strong drugs and it is not always easy to know if you are doing the right thing! It is difficult to adjust to something else after being on the same drug for so long and it had been working so well.
Hi Forum1
I’ve been on Vumerity for just over a year. 55 year old male,it’s been fine some face flushing which only last … maybe a hour.
Really bad diarrhea recently…but I’ve got bladder bowel problems so couldn’t say if a side effect.
Had my yearly MRI end of November and consultant pleased and wishes me to carry on using,but if any issues arise to contact my MS nurse as first point of contact
Hi Rocenante
Thank you for your reply. It is helpful to hear someone else’s experience of Vumerity. I also have bladder and bowel problems and found over time it caused constipation for me and because I did not feel good on the full dose, I am still on the half dose after nearly a month. I think my MS team are now inclined to move me to Kesimpta to rest my stomach after nearly ten years of Tecfidera.
I am glad to hear it is working for you and hope you can continue to tolerate it because there needs to be an alternative to these generic versions of Tecfidera for patients who cannot tolerate them.