Ive decided to have some time away until I am diagnosed with the correct type of MS. In less than a year Ive been diagnosed with RRMS and PPMS and now they`re not sure. I have another MRI scan on July !st.
I read all your posts but nothing is really relevant to me as I dont know what category Im in and therefore think along the lines of what am I doing here .
As I`ve said before I feel better now than I did when first diagnosed Feb 2016. My worst symptom is fatigue and my dizziness, balance and toilet urgency have all improved a lot.
But sometimes you need some distance from all the confusion of what is and what isn’t applicable for or to you. As Ellie said, labels shouldn’t define us. But it’s one thing to say that and another to live it.
There are people who consider PPMS to be a different disease to RRMS/SPMS and others who think they are basically one and the same, i.e. that people diagnosed with PP have actually had silent RR for years. Who’s to say? And does it matter? I would say if you can definitely pin down relapses and remission, then yes it does matter because DMDs could help. But absent relapses and remission, then they won’t help. And the problem is that you can’t (officially) get DMDs with progressive MS. And if they’re not going to help then why suffer the side effects?
Whatever.
Come back to us when you’re feeling the need for company or when you get your answer.
My Iron supplements arrived today and Im quite certain Im feeling it working on one I had earlier or I`m just kidding myself. I also have some stronger Vitamin D3 (5000 iu) as recommended ordered.
