Hi,
I was diagnosed nearly 12 years ago. I have deterioated from no stick, 1 stick, 1 crutch, 2 crutches and now wheelchair when out.
I have not had a relapse as such so I am still relapsing remitting? How does anyone know?
Just feeling a bit low regarding me deterioation as having a bad week.
Thanks
Amy
amy
id say u are primary progressive,u sound very similar to me,that is wot ive been labled with,label dont matter at end of day,we have MS 
Hi Amy,
Nobody ever told me what type of MS I had. When I was dx in 95 they just wanted to get rid of you as quickly as possible. There were no DMDs in those days so it really didn’t matter.
I never had relapses but stayed more or less the same for 15 years. Now I refer to having SP because I am deteriorating rather quickly but who knows it might be PP that’s just speeding up. (Neuro is smiling but non committal)
I wanted it to be a relapse and then it would stop but after 2 years I think that’s a vain hope. As you say who knows? I would go as far as to say who cares? I just try to get on with it.
Hope your bad week passes and you can find a way to “get on with it” too.
Jane