Hello and thanks for much for this forum. I am a bit lost here!
I’ve had issues for 3 years and standard NHS tests have come back “normal”
I have numbness in my hands, knee pain and clad muscles, big toe joint pain and I can’t empty my bladder.
I had an US that showed I can’t empty it with no physical reason and there was no follow up. I’ve just been trying to live with it.
My mouth is incredibly dry and two weeks ago, all of these things flared up and the fatigue has been overwhelming.
I requested to see a specialist in Sjogrens so am on a waiting list for that but also in the last couple of day, the colour in my left eye is darker than the other one.
This is making me think it may be something else.
I feel completely unheard at the GP so want to try and save and do some private scans before contacting my GP. Things to either rule out syndromes or else give them a reason to refer me.
It’s so hard for them to even give me a blood test let alone anything else.
Please can someone advise what to do and whether my symptoms are worth checking out for MS.
Getting your eyes checked would be a good and easy start if you haven’t already. Mention the change in colour vision. Optometrists are very thorough in my experience.
Normally with Optic Neuritis you get the opposite, colour blindness basically or sepia colours, but get it checked at the optician. I also lost my vision completely. It returned but with colour blindness and sepia. Now it is 80% back to normal. Colours are still off though.
Thanks so much. Am seeing a private ophthalmologist this afternoon. I can’t get in closer with my Dr despite having a lot of cognitive and walking issues joining the party. Just want them to tell me my eyes are ok at this point. Thanks so much
Thanks so much, have a private appt booked today with an ophthalmologist. I’m still in this attack of things and waiting to speak to a Dr, they won’t change my telephone appt in a weeks time, despite my speech sounding drunk and I can’t find words along with shuffling. Feeling totally lost and unheard. Thank you and sorry for late reply, not been great