I am still waiting for the hospital to get in contact about my MRI results and also to send a blood form because the consultant wrote me a letter summerising our last conversation. The letter also said my blood tests were fine but she wanted me tested for B12 and Copper which is no surprise from what I’ve read.
I wanted to ask about swallowing difficulties. The consultant asked me if I had any and I said no because it wasn’t a question I had thought about at that point. Since the brain haem I get brain freeze quite often and I was expecting questions about my hands and arms and not anywhere else. Anyway I do have problems occasionally. Every so often food seems to stick in my throat and I can’t force it down. Much more regularly I haven’t eaten or drunk anything and I just feel like I am trying to swallow a lump constantly, that can be a fairly constant thing for days. Does this sound like the kind of thing she meant when she asked me?
It’s occured to me because last night was particularly bad. The lump in my throat felt huge when I was trying to eat. I couldn’t force it down and ended up trying to make myself sick (sorry) to releave the pain in my wind pipe but it didn’t really help. I have barely slept all night (probably because I didn’t keep my amatrip down) and the discomfort is still there.
I am in rehab all day today but will try and see my GP next week if I don’t hear from the hospital. I worry that if I ring back and say ‘yes I forgot I have swallowing problems’ I will look like I am trying to fufill the symptom list. The consultant seems very brisk and business like but didn’t cut me any slack when I got my left and right mixed up even though she knows I have some brain damage now etc. I just want her to ring and say ‘you’re MRI shows X which means you have Y and now we do Z’ but from reading your posts it just won’t be like that will it?
Wow, sorry! Bit epic! Any experiences or opinions very welcome.