I have a referral to see a neurologist in 6 weeks about something notionally unconnected to MS. I have growing suspicions about MS - should I somehow get this on the agenda before my appointment? I am also conscious about being marked down as one of the worried well, particularly having read http://www.theguardian.com/society/2015/may/16/you-think-im-mad-the-truth-about-psychosomatic-illness.
Any advice would be gratefully received.
As for more details, see below!
I am currently experiencing:
memory loss (particularly people and conversations)
cognitive impairment (concentration, spelling, word recall)
urinary symptoms (urgency, frequency, poor emptying)
change in bowel habits (including urgency, frequency, poor muscle control)
numbness in one foot plus occassional stabbing pains in balls of both feet
tingling / pins and needles (variously in hand/feet/arms/legs/head, on waking, persisting through out the day, and occassionally induced by stress/ emotion)
muscle pain in right bicep
Before leaping to a conclusion that MS is an obvious diagnosis (according to Dr Google!), here’s some history too!
Major health events that might explain some of the above include:
a) A diagnosis of a possible heart condition in December 2013, resulting in me having an internal defibrillator fitted, due to family history and tests following a bike accident.
b) Neurological damage, i.e. a minor brain injury/post-concussion syndrome, caused by hitting my head in the bike crash in Dec 2013. A CT scan done in the summer of 2014 showed no obvious damage. An MRI scan was not done at this point.
c) Depression. I was struck by very low mood in August 2014, given counselling (Nov-Jan 2015) and anti-depressants (Nov – present). My mood improved dramatically since Dec 2014 and I am currently phasing out the medication.
d) A diagnosis of prostate cancer in autumn 2008. This was prompted by urinary symptoms which persisted following treatment in March 2009 but cleared by autumn 2014. The urinary symptoms returned in December 2014, accompanied by the change in bowel habits. Possible radiation damage is currently being investigated.
e) Mal-absorption of nutrients is also under investigation by a gastro-enterologist, mainly because of the bowel and urinary symptoms, although blood tests have previously shown low vitamin D.
Any one of these events variously explain symptoms 1-5.
As for symptoms 6-8, the tingling and muscle pains are not currently under specific investigation but may be linked to events above. In particular, the numbness in the foot dates from the bike accident in Dec 2013. In addition, I suffered severe lower back pain while in hospital which was investigated but nothing unusual found. The pain cleared up but numbness in the foot persists.
The tingling is something I noted in passing in November 2014 but again this appeared to clear up. It has become much more continuous since March/April 2015. As an aside, stress related tingling has occurred (very infrequently) over the last 35 years but has never been such a continuous symptom.