Does anyone else just suffer in silence because they dont want their family to feel like all you do is complain?..Today i feel so ill and down…but as yesterday was my birthday i dont want to be seen as miserable and ungrateful at the effort they all went to even tho i struggled to stay awake and had realised that the FND has stolen my bubbly spontanious personality…i really hope the old me returns…
Hi Nettie, I do understand your feelings. Not everyone gets what it’s like to feel fatigued all the time.
Take things slowly and rest well sweetheart.
Boudsx
Good morning Nettie
Yes your right there are a lot of people around you but unless you have some form of MS they can’t fully understand what a daily struggle we go through, that’s why a forum is so important. People with MS understand people with MS!!
Sorry to hear that you are feeling rough and hope things will get better soon. As for suffering in silence to avoid spreading the burden, I know what you mean. When things are tough but not obvious, sometimes I wish my family could experience how I feel (just for 10 minutes) to help give them a bit of my perspective. Then I get over myself and thank goodness they don’t also have to cope with the actual symptoms.
Here’s hoping you start to feel less rubbish very soon.
Mick
Thank you for your reassurance 
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Hi
I had a similar thing last week - it was my birthday, and it was the worst I’d felt physically since I can’t remember when.
I didn’t suffer in silence though. I saw different friends at different times of the day, and I said how I was feeling. I didn’t complain about it - I think it’s possible to simply be honest with what I’m feeling without it turning into a woe-is-me complaint. And nor does that sharing mean I can’t be grateful for the presents and food - I was, and I thanked them. (As an aside, being thankful is well proven to help improve our mental health).
Personally, I don’t think keeping everything in is a good long-term strategy. It’s not good for either our physical or mental health. When I talk to others, it’s like opening a pressure valve, letting off some steam. And while others might not understand like we do, they can still help bear the burden and support us.
Dan