Hi all, I have a question about sudden onsets of fatigue with pressure headaches (and sometimes brain fog). I was diagnosed in August, still waiting for my DMT (and..surprise surprise, I’ve just been told it will be delayed for at least 2 weeks, Christmas might be interesting 
). That aside, since my relapse in June, I’ve been experiencing random fatigue episodes (or perhaps noticing it more now that it is officially RRMS), . For example, I wake up fine, start work (wfh atm), do something at lunch, like go for a walk or some house stuff (cleaning fridge in preparation for the medication :D), and then suddenly, out of nowhere I feel like I need to lie down and my head is pounding…if I can I will try to have a nap but difficult during working hours with calls and incoming queries…so my questions is, to those who have this symptom, are there any ways / tips on how you manage it? Things you do / or avoid that help? I guess I spend a lot of time in front of a screen and I do notice I get fatigue either on Fridays after a full week, or on days when I am very busy with meetings, emails etc. Any tips are appreciated. Thank you, Paulina 
hi mozajka
sorry returned too soon. mozajka i have suffered from fatigue for sometime and i find the only thing that works for me is to rest to recharge the batteries. i just have to give in for a while, my batteries recharge quite quickly if i rest or sit down.
Thank you @janie_54 , I guess that might be the best - I tried for 20mins to close my eyes today (until woken by a courier), it did help a little (when I get it, it’s like something hit me and when I lie down it feels like falling, bizarre) buit you’re right, it did help…. and I also tried to stay away from laptop for a bit and distract myself. I find it hard to relax/nap when I know I should be working but needs must I guess, the email will be there when I come back…
Hi Paulina,
I wonder if you have told work about your MS? And what kind of accommodations might helpful to you, eg reduced hours or a different parent of hours? It sounds like at the moment you need more rest, and I can’t see that ‘pushing through’ would do you any good.
The MS Society website has a section on fatigue - there might be something useful in there.
Best wishes
Alison
Hi @lnp8acr
Thank you. Yes, I talked to work as, well they noticed my 7 week absence (hospital + sick leave) - my relapse was quite severe and after the hospital I had daily headaches, lost strength, couldn’t walk in straight line for a few weeks, my memory got worse, and I was just super tired all the time), eventually it calmed down after a few weeks. They let me wfh for the forseable (at least until treatment starts) but I think they’re getting impatient now as I was meant to start dmt in November. My dmt is now delayed but hopefully I’ll start in next couple of weeks before Christmas. I have a chat with my manager and hr next week, i don’t think they realise it’s not just a paracetamol I’m about to start taking. 
So I will have to explain it all. I still have symptoms almost daily. Frankly, I am worried as my MS Team are clear that I cannot start the dmt if I have cold symptoms, even cough or an infection.. commuting to Central London on busy trains and tubes from where I live is not something I want to do right now even with a mask. I do want to go back to office and see my colleagues, go to Christmas lunches, but not now when everyone around seems to be falling sick. If i get sick, then it is delayed for another few weeks. It is very stressful and even though I started amitriptyline to help with headaches and sleep, my daily headaches returned. My last relapse must have been quite severe as prior to June, I stopped thinking something might be wrong, I only had some leg issues and numbness but I thought it was due to a knee injury. Anyways, wish me luck next week:crossed_fingers:
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It sounds like you’re dealing with a lot! And it would be helpful if your manager / HR could educate themselves on MS symptoms and treatments. Perhaps directing them towards the MS Society website would be helpful, or referring yourself to occupational health?
I understand your worry about delays to starting treatment. I’m similar. My Kesimpta got delivered a week ago but I can’t take the first dose until 16th December as I have the flu, just getting over it. It’s really floored me.
What treatment are you starting on?
I wish you well with it
I’m preparing a list of ‘useful links’ and what to say when I meet them on Thursday. I’e been told ‘nothing to worry about’ but I’ll be ready
Sorry you’ve been unwell! Ive had all the jabs now but keep thinking I have a cough, cold, or maybe its just dry air from the heating! Who knows. Hope you get better (or already are, sorry for delay in responding) and you can start yours on 16th!
I’ll be taking Mavenclad pills and, actually I received a call from the homecare team on Friday so it’s not delayed after all. The delivery is scheduled for tomorrow and I’ll start tomorrow afternoon, eeeek. I’m excited and scared at the same time. Hopefully all goes well.
Thanks for your kind wishes
Goos news on the Macenclad! I hope it goes well for you