Mum’s had her diagnosis of PPMS for just over a year now. Typically of PPMS, things are steadily getting worse. I’m finding coping with it extremely hard. I’m studying for my masters at the moment and am riddled with guilt as her MS stopped her from finishing hers.
I feel so guilty that I find life hard at the moment. I have had to take time off uni because some days I find so difficult to come to terms with where we are now and fear of the future.
Our family is rather small and I don’t think anyone realises that it’s going to get worse. She cries every single time I see her (twice a week typically) and I try my very best to keep her mood as high as I can. We take lots of Costa trips!
Although good news, we’re doing to Disney World in Florida next September! I managed to convince her to come with me and my partner as she’s always wanted to fly on a plane. Now we’re going! I think it’ll be great to have something to look forwards to.
Does anyone have any insight into how I can cope better? the anxiety is killing me!
I think I just worry a lot about how she’s feeling and that gets me down.