This is the first time that I have posted on here. My Mum has had MS since 2000 and started with tripping over here and there to now being bed bound. As things have progressed she has become catheterised, has a colostomy and now is peg fed. Being peg fed was bad enough as it took away her ability to enjoy food. She has been in and out of hospital for the last 5 years or so and is in hospital again now after only coming out 4 weeks ago with yet another bout of pneumonia. I know it is not me that is physically going through this but I am finding it increasingly hard to deal with - me and Mum were close and I can’t bear to see her suffering like this. I had a lovely conversation with her yesterday but MS has impacted her mentally as well, and it is almost like she has Alzheimers. I feel so helpless and I wake up every morning feeling more and more sad.
I know there are no solutions, but I guess I just wanted to reach out to anyone out there who is also going through this and wondered how you do cope and try and be positive about it all.