struggling with a relapse and work

Welcome and introductions
21

Hi @mozajka

Thank you for the long message, i have a planned conversation with an OH doctor that came both from me and HR, at work they have been really supportive at looking to try and find ways that will help me return. At the moment i am waiting for the relapse to ease off and for a visit in hospital next week with a neurologist for a relapse clinic and the MRI scan which is scheduled for early March. When meeting the OH doctor i will see what zhe think may work and I may end up suggesting reduced flexible hours and primarily working remotely in order to avoid wasting energy with the commute. I will explore if also working part-time would be acceptable… at the moment fatigue is unbearable from the moment i wake up and am hoping it will get better so that i can go back doing at least shorter days with flexible hours to allow me to manage fatigue and switch off when needed. I will let you know how it goes and thank you for sharing with me your experience x

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22

Sorry for the very delayed rep. Hope you’ e feeling better and the symptoms subsided a bit. How was the OH meeting?

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23

Hi sorry for the delayed response, it has been a rough ride. Fatigue has decided to not leave me and legs are like jelly most days. Thankfully the latest MRI scan has shown no new lesions but the neurologist told me the symptoms are consistent with progression independent of relapse and so they will monitor:( … i am doing the fatigue management course and going through talking therapies to help me manage my symptoms and get back in a better shape, especially emotionally. I have had good help from the physiotherapist and have started exercising to help with balance and strength training for core and legs… i know all will help in my journey

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24

I hate it when doctors say ‘we will monitor’ when all we want to hear is ‘we will fix’.

I am sorry that life is being so difficult.

I’m on the physio strength and conditioning path myself. Even marginal gains that improve function just a little are worth so much. Here’s to progress for both of us.

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25

Absolutely so … there are days I just wish i woke up feeling full of energy again, hopefully the path we are now both on am sure will help x

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26

It’s great news that you are getting some support @emi_vad, though of course we would all prefer not to have these problems in the first place!

Go gently xx

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