Hi. I started suffering with a fuzzy brain, hard to concentrate etc last. year but at the time I was going through a lot and put it down to anxiety. Then at the beginning of the year i was getting blurred vision as if I had loads of floaters in my eye but optician found no real issue. I started getting a weakness in my hands and the constant tingling started In my left hand. Since then my I have suffered with numb hands in the night, real bad fatigue, tiredness, brsin fog, I struggle sometimes to remember names and feel like I’m jumbling things. This is very sporadic tho. I was having the pain in the ribs, one day it would feel like my ribs were crushing my stomach other days it be higher up , this has calmed down. Stiffness and pain in joints. I walk like an old woman if I’ve been sitting down too long. Sometimes gave balance issues where I bang into things. I have days where I’m literally crawling or pulling myself up the stairs.
I have been referred to neurologist as urgent but been told this is an 18 month waiting list. I was referred to doc for mri to speed up the process and I had this the end of June but been told it’s a 3 month wait for results. It’s coming up to the 3 months now. It’s hard as I really don’t want ms but at the same time it’s going to be hard going back to square 1 not knowing what’s wrong and how to deal with it. I have quite a busy life as I have 2 young girls and they got lots of clubs etc but I am really struggling . My husband is one of those people who think exercise will help everything and it may do but at this time when I’m struggling to even stay awake during the day sometimes or struggling to get up the stairs exercise is the last thing I want to do. I’m not very good at admitting I’m unwell. My mum is a hypochondriac so I get paranoid people will think the same about me but there’s something wrong and I can’t live my life feeling like this constantly
Hi Gembow
Sorry to hear you are having a tough time with symptoms. Hopefully the MRI results will be in soon and you get some answers. Unfortunately it can take quite some time (as many here will tell you) to get a final diagnosis one way or the other. For now, try to avoid Dr Google as best you can and keep a symptom diary of what, when and how it affected you - you can work out what time of day is better for getting stuff done (or not as the case may be); it is also useful for when you are speaking with the docs.
Weirdly, exercise can (for some) help with fatigue, keep it gentle and build up a little at a time.
Various vitamin supplements can help with brain fog - Vit D3 in particular is very useful.
Hyperbaric oxygen therapy can also help with fatigue and brain fog - it might be worth checking if there is an MS Centre near you that can offer this therapy.
Hi that is really helpful thank you. I called the hospital yesterday and now told it could be 4 months rather than 3 for results so that upset me. I have a doctors appointment next week and will ask for advise etc forbthe fatigue. I really can’t go on the way I am. Maybe a b12 injection may give some help. Who knows xx