Hey All,
I was wondering if any of you can help me. The 7 months have been hard for me and I just want to start feeling better. I’m begging any of you to take a look at the below and let me know of any insight that you can possibly provide on the matter.
Over the last four months, I have been experiencing a wide range of strange and disturbing symptoms. I have not found any answers from a traditional healthcare standpoint and decided to reach out to you to see if you’ve heard of anything like this. Below, I will outline the symptoms that I have been experiencing along with the tests that I have done from a traditional healthcare standpoint. Again, ANY help that you can provide on this would be greatly appreciated.
I still feel that this could be MS as the symptoms seem to fit but the Brain/Spinal MRI ruled it out from what I have been told.
Major Symptoms and Concerns:
- Muscle Fasciculations - Calves, Face, Stomach, Legs, Triceps - No Cramping
- Comes and goes with moderate severity - Worse after exertion
- Unprovoked Muscle Soreness/Pains + Joint Pain
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Comes and goes unprovoked
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Can be felt in legs, arms, chest, feet
- Chest Pains
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Chest Pains/Arm Pains worsened with Stress
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Can go into Jaw
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No Shortness of Breath
- Hand Coordination - Feelings of off-balance while walking
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Balance Tests Normal/Better when not paying attention
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Missing objects when grabbing/missed keyboard strokes
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Fine Motor Skills OK - Tieing Shoes, etc.
- Pins and Needles anywhere
-Occasional Numbness
- Heavy Anxiety Attacks
- Nothing like I have ever seen before, horrible feelings of impending doom
- Oral Issues
- Mouth Sores Formations/Tongue Pain
- Gastro
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Heartburn (Something in Throat)/Burning in Sternum
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Stomach upset and gas after eating
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Vision Floaters/Tinnitus in left ear
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Long-Term Frequent Urination - Stream/Start/Stop Issues - Sometimes
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Nerve Hypersensitivity - Along Toes, Sometimes Chest
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Sporadic Mental Confusion + Forgetfulness/Low Libido
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Blood Sores in Mouth and Mouth Ulcers - Random - Worse after eating - THIS SEEMS TO BE BETTER RECENTLY
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Decreased mental sharpness/Forgetfulness?
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Weird Finger Blister Formation - Right Middle Finger - Provoked from Writing/Typing/Fork Use
Family History: Diabetes, Rheumatoid Arthritis, Sarcoidosis, Parkinsons, Alzheimers, High Blood Pressure, Old Age Heart Attacks, Hyperparathyroidism, Distant Huntington’s (second cousin), No Allergies
Tests Completed (Last 5 Months):
Head CT Scan = Fine
CBC Blood Tests = Normal - Slightly low red blood cells and platelets - Slightly Varied - Consistent with all CBCs
Sed Rate Blood Test: Very Low = Normal
Vitamin B12 = Normal
Vitamin D = Low - 12/28
Magnesium = Low - One-Time Low - One-Time Normal
CMP (Metabolic Panel) = Normal
Physical Exams = Normal
Brian MRI = Normal
TSH = Slightly Low - Normal Since
ANA Positive = Slightly Off - May suggest an Autoimmune Disease - Normal Exam
Lupus Test = Negative
STD Tests = Negative
Cortisol = Normal
First and Second Lyme Test = Normal
EEG = Normal with Fainting
Full Spine MRI = Normal = Minor Disk Disease and Arthritis
Heavy Metals Blood Test = Normal
Celiac Blood Test = Positive - Negative Biopsy
Echo Scan= Normal
Multiple EKG = Normal - Always
Cardiac Enzyme Blood Test = Normal
Chest X-Ray= Normal x2
Heart Stress Test = Normal
Glucose Test = 49 = Retest Required
Magnesium x2 = Normal
Stool Parasite Test = Normal
Rheumatologist Meeting = Nothing Presenting after Full Exam
Folate = Normal
Basic Metabolic Panel x2 = Normal
Adolate = Normal
Parasites Stool Test - Negative
Western Blot x2 = Normal (3-4 Active Bands on either test)
CK (Creatine Kinase) - Most Recent = Normal
Sed Rate - Most Recent = Normal
Vitamin B12 - Most Recent = Normal
Babiesa and Rocky Mountain Lyme Tests - Negative
Hepatitis Panel = Normal
Vitamin E = Normal
Diabetes A1C x2 = Normal
METANEPHRINES, FRACT. LC/MS/MS, RANDOM URINE = Normal
C-Peptide = 1 Abnormal
Glucose - 1 time low - Now Normal
Copper = Normal
TSH (with antibodies) - Most Recent - Normal - 3.34
THYROID PEROXIDASE AB (TPO) = Normal - 17.76
MMA (Mythlynomic Acid) = Normal
Mold Allergen Blood Panel = Normal
Cereal Allergen Blood Panel = Normal
Full Neuro Exam x2 = Normal - Nothing Indicative - Flasictulations Beginin - NO EMG TEST NEEDED - NEXT NEURO 9/21
Basic Metabolic Panel x5 = Normal
Endoscopy = Normal - CELIAC/H Pylori BIOPSY NEGATIVE
Minor Colonoscopy - Normal
Testosterone - Low-Normal - Recent
Cortisol - Most Recent - Normal
Folate = Normal
Mast Cell Activation Syndrome - Clear Trypses and Urine Tests
7-Day Glucose Monitor - Normal - Excellent
Allergy Exam - Nothing to add/no concerns
Myasthenia Gravis Blood Test = Normal
Seratonin = Normal
Epstein Barr = Abnormal = 81/316/322
Infectious Diseases Specialist: Nothing to add - Awaiting to send Lyme Results and possible 3-week doxy.
Cardiologist: Nothing to add - Heart in Excellent Shape
Recent Sed Rate and CRP: Normal = Inflammation rate
C3A/C4A = Normal
Leptin = Normal
IGENX Lyme Tests = Looks to be negative - exception of Barrelious
Melenocyte Test = Normal
Mold Panel = Slight Positive
All Inflammation Markers = Negative
Brigham and Women’s Lyme: Negative
Recent Folate: Over 20 - HIGH
Recent B12: 1403 - HIGH
Recent CBC - Still enlarged RBC and Macrocytosis
MMA Test: .38 - Within the higher normal range
Homo-cysteine Test: First - Slightly Elevated
Mold Infections: Possibility
Fasting Homo-cysteine: Normal
Fasting MMA: Normal
Fasting B12: Normal
Fasting Basic Metabolic Panel: Normal
Water Lead Test: No Lead
I’ve basically learned to live with these symptoms at this point but I feel like things are getting worse. I keep getting told that I am find but I know that I am not. I find myself missing things sometimes when trying to grab something/missing keyboard keys, getting random rashes, etc. The most disturbing is the muscle twitching/random soreness that can occur anywhere on my body.
I am getting nowhere with traditional medicine at this point and I feel that doctors are scratching their heads.
My diet and exercise patterns have always been excellent and I do not take any medication.
I’m really very troubled by everything and am desperate at this point.
I would really appreciate any information that someone can provide on my issues.
Thank You,