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Still undiagnosed - can you advise

I haven't been on here for a while as really I've just been trying to get on with life and as I am still undiagnosed and therefore don't know if I should be on this site and I don't really have much to add to the forum I'm afraid, but if possible I would like to hear from anyone with neurological symptoms such as pain, fatigue, sensory symptoms such as pins and needles/numbness etc who have been seen by Neurology consultants at Leeds General Infirmary.  I am now being sent there for a second opinion and as I have to make my own appointment next week once my doctor's letter reaches them, I wondered if anyone had any advice about the place please.  

Hi Sara,

I'm sorry, I can't answer your question about Leeds, but I just wanted to reassure you that you are definitely in the right place. Limboland is a confusing place to be, so if you have any questions, no matter how random, post on here and there will be someone to advise you.

I think most people who finally get a diagnosis have been in Limboland at some point, as it can take sooo long to 'fulfil the criteria', so don't worry! All the symptoms you mention could be pointing towards MS, but in the meantime, try to chill and use the forum to offload.

Hope this helps,

Choochyx

Hi Sara,

I'm sorry, I can't answer your question about Leeds, but I just wanted to reassure you that you are definitely in the right place. Limboland is a confusing place to be, so if you have any questions, no matter how random, post on here and there will be someone to advise you.

I think most people who finally get a diagnosis have been in Limboland at some point, as it can take sooo long to 'fulfil the criteria', so don't worry! All the symptoms you mention could be pointing towards MS, but in the meantime, try to chill and use the forum to offload.

Hope this helps,

Choochyx

I would be interested in knowing the same thing Sara, I am thinking of asking for a second opinion at the LGI as well. I get a lot of the same symptoms as you.
The one I saw here was useless!

Hi, I am still undiagnosed after 14 yrs and have seen 13 neuros at Halifax, Dewsbury and Pinderfileds.

Since 1999 i have had 5 changes of diagnosis going from possible PPMS to HSP and back again!

My neuro at halifax referred me to Dr Lily at Leeds recently and for some reason he won`t see me.  ?Why I just can`t think. My GP is chasing it up for me. Perhaps he thinks i`ve had enough NHS money spent on me!

I hope you get a better outcome. let us know, yeh? Which area are you in?

luv Pollx

Thanks to you all for your thoughts.  this site always make me feel I'm not alone and I am so grateful for that! xx