Stem cell Trial

Primary progressive MS
1

My husband has PPMS (diagnosed 4 years ago) and was selected to take part in a 2 year stem cell trial based in Bristol. Last year following a battery of rather unpleasant tests, he had stem cells harvested and then had an infusion put back into him. He doesn’t know whether he had stem cells or a placebo but is now awaiting to have whatever he didn’t have last year infused. Is anyone else involved in this trial or a similar one ? We re wondering what their experiences have been - so far he believes he only had the placebo as his symptoms have worsened but he wants to stay optimistic that next year things may be more positive.

Caro

1 Like
2

Suggest you post this on Every Day Living. I’m desperate for good news also!

3

Is that the STREAMS trial?

Sonia x

4

It sounds like this one.

5

Thanks Whammel I hadn’t seen that one.

Sonia x

6

HI there,

I got dx of rrms in 2012.My last MRI scan after having been put on copaxone after being diagnosed showed no significant change.I however feel that it is worsening a tiny bit daily as in as if it s become secondary progressive ms.What do you guys think?The nurses and neuros say I’m wrong.I d love your advice. I feel confused.Thankyou so much.best Wishes,Lady Bubblegum.x