I’ve been doing loads of research into finding a cure for myself because I’m sick of being sick!
Now although I appreciate there is no definitive cure for MS, numerous trials have been carried out using Stem Cells for MS dating back to at least 2007 & the results although not officially proven have been positive. Stem Cells are not new either, 20,000 people worldwide have been treated with Stem Cell therapy for lots of different illnesses.
Why is this treatment not available on the NHS? I know 25 patients with MS are being treated in Sheffield but why aren’t more of us getting a chance? & there is a better way of using Stem Cells so you don’t have to have Chemotherapy using Umbilical Cord Stem Cells!
I’m sorry but I think we’re all being duped! The NHS should be testing umbilical cord stem cell therapy on at least a 1000 people a year! At least!
I’m not arguing with anyone on this site about if it works or not, read up about the clinical trials, read the clinical trial papers, I have! Yes more trials need to be done but that’s my argument, why are more not being carried out on the NHS & not just for 25 people!
We all need to write to our MP’s, I’ve wrote to mine & it turns out she spoke about stem cells on the weeks previous Prime Ministers questions! So let’s get the ball rolling, we’ll never get a cure if the don’t do the research & it needs to be the right research!
Stem Cells are the future in medicine & the major game changer!
You join this forum less than a month ago.
You jump in onto a thread that is four (count them, 4) years old.
Then you jump in on a more recent thread.
Then you start your own thread.
As whammel said, you seem to not understand the replies to your comments in a previous thread…
Yes, there have been numerous trials involving stem cells.
Perhaps you do not comprehend that there are more than one “stem cell” technique.
When you have grasped that, then you can tell us which ones have been “successful”, and what criteria you use to judge success.
You (deliberately?) miss the point that stem cell treatment is already available on the NHS.
And, do you have any idea what research actually costs?
Given that the NHS do not have an unlimited pot of money, which treatments would you like them to stop so that they can carry out research into whatever you want?
the NHS spent £14.4bn on drugs 2013-2014 (the pharmaceutical journal). Seems like the NHS is a cash cow for Drug companies!## STEM CELL TREATMENT IS THE FUTURE! We all need to write to MPs & insist more Stem Cells clinical trials are carried out for MS.
the stem cell therapies i have read about are not exactly devoid of pharmaceutical products themselves.
also, given the ‘pioneering’ nature of this side of the medical industry, one might reasonably expect costs to currently be priced at an absolute premium.
as conspiracists would hold that ultimately those treatments and cures we are / are not permitted to exploit is determined on how lucrative they are projected to be, is ‘makeadifference’ able to quote the expense incurred to those undergoing stem cell therapy?
i wouldn’t be surprised to find that the evil drug product is the more effective and affordable option, whilst being significantly safer too!
And in 2014, the HSCIC (the Health and Social Care Information Centre) reported that over 1 billion prescriptions were issued annually.
Not all of these, or of the drugs you quote as £14.4 billion are (of course) to treat MS
On this basis, the average spend per person was less than £14.40.
If we take the cost of a “stem cell trial” at a conservative £1,000,000; that would mean that the trial would deprive around 70,000 people of their medication
Some of those 70,000 people would then likely end up in A&E, and/or Intensive Care and then cost the NHS several £1K per week.
Your trial would also cost about the same as a year of dialysis for about 26000 patients with kidney failure.
Hi Guys thank you for your replies really appreciate it, everyones opinion is valid!## Just to let you know my local MP Tulip Siddiq has drafted questions for Prime Minsters Questions in Parliment about Stem Cells in conjunction with MS! I wrote to Tulip a couple of weeks ago about Umbilical Cord Stem Cell treatment & why is it not available for MS patients on the NHS! Tulip Siddiq & her team will obviously have done there own research into this subject & I’m guessing Tulip thinks similar to myself if shes going to ask David Cameron, hopefully she’ll get a chance today, PMQ’s on The Daily Show BBC, SKY & Parliment channel this aftenoon!## ## Economically if this treatment proves to be effective in this country it has the pertential to save billions in drug cost & DWP payments. This also is a promising treatment for numberous other illnesses saving more tax money.## ## I’ve noticed on the research page on this site a new video from a leading UK research stem cell doctor talking about umbilical stem cells, haven’t watched it yet but I’m going too, other people may be interested, wanted to post about PMQ’s today!
It’s a very tricky process getting to ask a question at PMQ’s and Tulip got to ask a question last week, so not on the running order to ask another this week, but I admire your confidence. Do you really think she is going to ask the Prime Minister a question in Parliament about an unproven treatment?
I took this from the American MSS.
Can cord blood be used for MS research?
Research is being conducted using cord blood cells to analyze immune response and other factors that may eventually shed light on causes and treatment of MS. However, at present there is no treatment available involving cord blood cells. Nor do we know of any sites that are looking for cord blood specifically for MS research.
Bone marrow transplantation, also called hemopoietic stem cell transplantation, is under investigation for the treatment of severe forms of multiple sclerosis. The long-term benefits of this experimental procedure have not yet been established. In this procedure, the individual receives grafts of his or her own blood stem cells, and thus donor stem cells are not used or needed.
Umbilical cord blood is being studied for potential use in a wide variety of life-threatening diseases because it is a rich source of blood stem cells. Transplantation of blood stem cells from umbilical cords has been used successfully to treat several pediatric blood diseases, including sickle cell anemia and cancers such as leukemia and lymphoma. This procedure is still considered investigational. There is currently no solid evidence that umbilical cord blood stem cells have the ability to be transformed into other types of cells, such as replacement nerve tissue or myelin-making cells.
I watched PM’s Questions just now, and this subject didn’t come up at all.
Of course, Tulip has - no doubt - more personal/pressing matters to think about at the moment. However, still a shame that the subject never came up coz I’d love to hear David Cameron’s thoughts on this ?
Ian Duncan Smith is speaking in the House of Commons at the moment, and he just strikes me as a wannabe PM who is angry and bitter about not making it as party leader
I can’t afford HSCT and would be terrified of the chemo so I was delighted to be enrolled on the STREAMS trial http://brokendancer.over-blog.com/2015/05/medical-stuff-update.html - my stemcells didn’t grow, so I came off the trial, I knew it was a possibility as it happened to one of the original participants.
I think there’s loads that can be done with steroids BUT there’s years of trials etc. to be done!
Hi Guys, I original started this thread about Umbilical Cord Stem Cells, we’ve gone off track! I appreciate how ill people are and sympathise I’ve got MS as well but no one’s listening to me! I may start a new thread! Basically I’ve spoke to the famous football coach in Texas and he’s been cured of MS! I’m the least gullible person ever (I don’t trust anyone), tested the guy, he’s not working for anyone, no conflict of interest!
Believe it, don’t believe it! Troll me whatever (I have got some MS trolls or “Fans” as I like to call them) but it’s a fact, Sam Harrell is cured of MS!
Repeat:
Sam Harrell has been cured of MS using Umbilical Cord Stem Cells!!!
No, Sam Harrell’s MS has gone into remission, perhaps permanently. The same thing happened to one of my friends who has MS. She wasn’t having any treatment when she was ‘cured’.
Hi, if you belive in stem sell treatment, go have it. Money is no valid reason- i have a friend who belied in stem sell but claimed due to finical side he cant have it. In less than a year through different charities he had 70000 donated in a bank account and at the end he didn’t have it purely because he confessed “im to scared”. if you are not - the options are available for you.
The thing is that you have posted before on this same subject. You’ve been told that HSCT is available via Barts in London. Yes we believe that HSCT is a valid treatment for extremely active RRMS. We don’t 100% agree that umbilical stem cell treatment is the answer but repeatedly telling us it’s a cure does not make it so. And the fact that HSCT is difficult to access for many people who might qualify, but is at least accessible for some on the NHS, does not make a treatment that is unproven, very expensive and available only a long way off from home more attractive.
If you believe in it, go have it, we’ll be more than happy to hear about your experience and the results. But, you can’t convince us by just telling us that it’s the answer in big bold letters.
I took part in the STREAMS trial but had to leave when my stemcells didn’t grow. I was aware that this could happen as it happened to one participant on the first tranche. I was disappointed as this trial did not involve themuse of chemo like HSCT does.
The reason chemo is used in HSCT is to reset the immune system. The last thing I read was about an even more aggressive approach in Canada where they completely destroy the immune system.
Would I have HSCT or something more aggressive? No, chance!
We’re not doctors and this is not a cure.
It is available on the NHS if you fit the required criteria but it is still as part of a trial. This is why a lot of people are on waiting lists for Russia etc.
To be honest HSCT is the way to go. It is very successful for early RRMS when no damage has accured. In SPMS and PPMS it has halted disease progression in most. Some (Vicki Taylor Wilson - kickinMS) welcome improvements have happened.
The NHS in London are now offering this treatment to people with early PPMS and SPMS. I dont think they would do it if no benefits could be seen. People have to have at least one active lesion on MRI to be accepted. The problem is that these are hard to catch on MRI.
The chemo is scary but then so is a long term future of MS. I suppose people have to decide which is more horrific to them.
I have just been diagnosed with MS. My local neuros have been faffing around with me for 6 years. I went to London, saw one of the Barts neuros got a diagnosis of RRMS, told to go back home and get tecidfera. Went last week to be told that I am not eligible. I think my local neuro now thinks I have had benign MS and now SPMS - although he didnt say this. He thinks that I have plateuaed and will get no worse so i should stay well clear of drugs of any sort. He says that loads of his SPMS/PPMS patients have plateued with minimal disability - he thinks I will fall into this category as my brain is very healthy looking on MRI.
