Last week I had a ‘whole of spine’ MRI, I was in the machine for 2 hours!! As I had it done without and then with contrast.
I am ‘still’ undx, (now over 6 years). My neuro, (who has in the past told me my condition derives from my spine, and he thinks I have 3 different condtiions going on, but he can’t fathom them out. Previous MRI in 2008/2010 (brain & C spine negative, LP negative), can’t find whats wrong!!
So he referred me to a different neuro, this new neuro is higher up in the medical ranks and is an MS specialist. He was very thourough, did a full thourough neuro exam, (much more than I’ve ever had with my original neuro) and ordred a whole of spine MRI with and without contrast. (he said a brain MRI wasn’t needed)
I’ve read, (written by a radiographer) that the only reason contrast is ordered on the spine is either looking for MS or tumour. (I don’t think I have a tumour as after 6 years, I think things would be very different!) So he’s obviously still searching for MS. I have the symptoms of progressive MS. I don’t have relapses.
Has anyone just got spinal lesions and have a had a long haul to get dx’d? I personally am still convinced it is PPMS.
And has anyone had whole of spine MRI? It doesn’t seem that common!
I’ve had all the usual chat from the neuros. i.e. we may never find out whats wrong, I don’t think it’s MS (even though he’s written evidence of MS on my notes). etc…
After 6 years I just want to know!!!