some help needed.

Things are going from bad to worse now as the pain in my back and legs is getting worse,. Im finding that I cant get out of bed in the morning and have to roll out and then hold onto the window sill. I cant walk very far either without feeling as though something is about to give way and have to bend forward to try and relieve the pressure. I really don’t know what to do for the best as I am working full time but finding it really stressful. I would like to reduce my hours but cant manage it financially. I have to try and sleep before i go to work otherwise i cant make it through a shift( i work from 1-9pm) and then by a couple of hours in im taking extra painkillers. Does anyone know if there is any help available? I live with my partner and he earns a good wage but we have the usual mortgage and bills which we took on because i an earning too. I really am getting stressed out about it all and feel like i have no where to turn for advice. Please could someone help.

Hello Anon,

I would suggest that you pay a visit to your doctor. You haven’t said if you are under a neuro, specialist or been dx with anything. What you have described could be caused by many things and the stress of money issues can’t be helping. I urge you to see your doctor. Wishing you good luck.

Janet

Hi Anon, your gp could refer you to physio for your back problems, the physio could keep your back moving and supple. I have problems with spasticity in mine and th.e exercises definately help. Frank

thanks for your replies. I havent been diagnosed, but been having various problems for 14 months now. I am already seeing a physio, but to be honest they havent really done anything to help so far. They prod me around a bit and then sday they arent sure what the best treatment is. I have now been refered to the head physio in the clinic and im seeing him for the first time tomorrow. Im due to see my GP on Monday and im hoping he will fast track my appointment to the pain clinic as im handing on by my fingertips at the moment.

Hello hun. i`ve been in your situation and know how upsetting and worrying it all is.

I think you would benefit from some kind of mobility aid…ie a stick or a walker. The physio gang provided me with such as i got worse. Speak to them about it, yeh?

Are you getting DLA? Check it out if not.

We have to allow ourselves to ease up and rest. The fatigue issue is really horrendous, as you already know. We get no medals for working and knackering oursleves. I found that out before I went on the sick…which led to retirement on ill health.

luv Pollx

Hi all, Thanks for all your lovely replies. Ive been to see the physio today and he said that he doesnt think they can help me. He said ive been going since March and if anything my symptoms have got worse. He said that by all means i could have a second opinion, but ive been 5 different physios in total and all of them at some point have mentioned a trip to the pain clinic. He said he would write a report confirming he thinks the pain clinic is a good idea and that is that. I do feel sometimes that because my MRI and CT scan results were clear that people think im making it all up. Every little comment people make I think has a hidden meaning, and to be honest I just want to cry and shout at them at the same time. If i was making it up I wouldnt have put myself through multiple blood tests, acupuncture and an IV Ct scan when im terrified of needles!

Hello again, take their advice and go to the pain clinic, you never know they might be able to help you. But what ever you do is don’t give up, if you have pain, then you have pain and it’s their job to find out why and how to help you. Don’t despair, doc’s didn’t believe me for years and years and said it was all in my mind, or I was depressed turned out I had ms. So please don’t give up.

Janet

x

Hi all,

Ive been to see my GP this morning. She said that they want to delay my referal to the pain clinic as im too young and they will put me on very strong meds, hich mean i will have problems working. Instead she has advised i up my amitriptyline and put me on 120mg of co-codemol a day. She also said that it might be an idea to put in a claim for DLA, especially as im having problems with full time working. She made one passing comment as well, after reading all my notes she said it looks like you have Chronic Pain Syndrome, but then didnt elaborate at all. It seems like this is a coverall diagnosis for anyone they cant yet diagnose. Whast do you think?