Well today i had my NCS & EMG, and as expected they are normal, so where does that leave me?
After my original post, this >>>>>>>>>>>>
2 yrs ago i woke one morning to fond i had pins and needles in my feet. This went a day or so later and the returned a while after. I am a 33yr old male who plays football twice a week.
My fingers the began to do the same, a sort of frost bite feeling would also be present. The feelings began to come more regularly.
I was tested for diabetes feb11( negative), and left it until aug11(1yr after symptoms started) as I began to get extreme fatigue and burning thighs. This time i was tested for B12 deficiency(negative). Again i left it and thought maybe its me. By this time all of the said symptons were joined by tiredness, constipation, unable to urinate fully, blurred vision, a bout of “conjunctivitis”(6 wks long), paon in lower back and limbs, and intense itching like bugs under skin.
I finally went back to docs in march this yr as i could not take it anymore. A rash had also now appeared on my arms and lower thighs above knee. I was given amytriptalyn and referred to neurologist. I see her in june, and at this time she said i have nerve damage in my right arm and hand. I had blood tests and again all negative. Booked for last week.
This time i had no sensation down my left side(arm and legs) and she said i had deterioated considerably in the 3 months since she last see me. I could hardly stand at the time, unable to straighten out or do some of her physical test. Again i had more blood tests including HIV. Again negative.
I now have a EMG booked for 19th oct and am awaiting MRI and CT scan. My thighs are almost constantly burning, and i have reqular bouts of lower back pain, and burning in my feet. I have now been put on pregabilin 75mg twice daily. This take the edge off all of it.>>>>>>>>>>>>>>
With todays EMG, I have also had every blood test possible with no positives, multiple physical examinations, and many hospital appointments and still nothing. Im now awaiting MRI and CT.
I had my worst known episode to date 2 weekends ago. Double vision, tight chest (shallow breathing as my ribs felt they were going to pierce something, fatigue so that i couldnt move, loss of co-ordination, and the heaviest of legs for 4 days straight.
So where do i go from here? Its not getting any better, and the pregabilin is not touching it. As you can imagine, all i want now is a diagnosis of some form so that i can put my mind at ease, no matter what it is.