2 yrs ago i woke one morning to fond i had pins and needles in my feet. This went a day or so later and the returned a while after. I am a 33yr old male who plays football twice a week.
My fingers the began to do the same, a sort of frost bite feeling would also be present. The feelings began to come more regularly.
I was tested for diabetes feb11( negative), and left it until aug11(1yr after symptoms started) as I began to get extreme fatigue and burning thighs. This time i was tested for B12 deficiency(negative). Again i left it and thought maybe its me. By this time all of the said symptons were joined by tiredness, constipation, unable to urinate fully, blurred vision, a bout of “conjunctivitis”(6 wks long), paon in lower back and limbs, and intense itching like bugs under skin.
I finally went back to docs in march this yr as i could not take it anymore. A rash had also now appeared on my arms and lower thighs above knee. I was given amytriptalyn and referred to neurologist. I see her in june, and at this time she said i have nerve damage in my right arm and hand. I had blood tests and again all negative. Booked for last week.
This time i had no sensation down my left side(arm and legs) and she said i had deterioated considerably in the 3 months since she last see me. I could hardly stand at the time, unable to straighten out or do some of her physical test. Again i had more blood tests including HIV. Again negative.
I now have a EMG booked for 19th oct and am awaiting MRI and CT scan. My thighs are almost constantly burning, and i have reqular bouts of lower back pain, and burning in my feet. I have now been put on pregabilin 75mg twice daily. This take the edge off all of it.
Is this MS or is this something they are never going to diagnose. I just want answers as some days i really struggle
Its hard to say either way but im sure they will have more answers for you after your MRI and CT…hopefully it will all be clearer and they can give you the answers you need. Im sure its a really hard time for you just now…there are lots of people on here far more clued up than me but if you need to talk…
A lot of your symptoms are found in MS, but unfortunately a lot of conditions can cause the same symptoms, so it’s impossible to try and guess what might be going on. With any luck the tests you’re waiting for will make things clear.
In the meantime, please make sure and nag your GP for help with symptoms: you don’t need a diagnosis to get physio (it should be from a neurophysio) or to see an expert in bladder and bowel problems. And if the pregabalin is doing no more than take the edge off, please investigate having the dose increased. (Obviously you have just started on it and it is the kind of drug that should be built up slowly, but the maximum dose is 600mg a day (e.g. 2 x 300mg) - assuming the neuro doesn’t have reasons for limiting the dose.)
I hope you don’t have too long to wait for those appointments, and some answers.
Hi Sherif, good advice from Karen, I recently started pregablin and ut was only taking the edge off it, I mentioned it to my gp and it went from 75 to 150 mgs and things are much better, the pain has’nt gone completely but it gas made the difference. Its the first decent sleep Ive had for years. Frank.
Saw my GP the other day and he is pretty convinced of ms. Knows my neuro personally and was very complimentary of her. Asked me if i had the eye problems which are usually a good giveaway apparently. Also got me to tell him the other symptons, and all the negative blood tests to rule of infection.
let him know that a resolution becoming nearer is putting my mind at ease somewhat.
Still having all of the above, but right now my lower back is killing me, and im struggling to stand up straight.