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So many symptoms, soon to see specialist

Hi, I developed a tremor about 3 months ago, since then I’ve had 3 episodes in the last few weeks, the 1st I was struck with severe tremors and nausea, the 2nd severe tremors, fasciculations, very unbalanced (felt I would always fall over) and faintness. The 3rd the same without the dizziness. I went to doc had blood tests, was fine but then I showed him my tongue fasciculations, and bad action tremor since I last saw him. He called another dr in, they examined me said something about brisk reflexes and said I have to see specialist and put an urgent request in for me. In the week since then I have had severe headache on occasion, trouble sleeping due to shooting pains down arms and legs, also aches. I also have trouble walking sometimes due to sharp pain down left leg, it just collapses. I had one day of severe fatigue, I kept dropping ice cream tubs when I took them with one hand (I am a chef), everything was so heavy that day, even struggled to open door nobs, then 2 days later felt normal again, everything easy and light as air. Through all this in the last week I’ve also had a very painful left eye that goes very funny with bright light, and at one point the lights from the food pass made it go completely blind for 10 or so seconds and I had to turn them all down. What do you guys think? I’m still waiting to see neuro but so many symptoms are coming so fast. I should also mention last year I suffered from trigeminal neuralgia that came on and off for a week at a time, I was due to see specialist but it slowely faded away, but for a while I still had reminders like 1 side staying cold for ages when I went down chiller isles at supermarket or came in from cold day. Sorry for long message, hope someone takes time to read it. Thanks. M

I think I forgot to mention that on a couple of days I have had trouble getting words out, I assume due to tongue fasciculations

Bump

Went to dr again today as couldn’t sleep last night for 3rd time, before was due to pains but this time was from pins and needles and burning feeling on whole right side of body. Been given some anti-depressants to help me sleep so hope they work :slight_smile:

Sorry nobody has replied to your post I think it got a little lost on the forum. I understand you’re probably worried a lot at the moment and all sorts of things are going through your mind. There’s lots of things that can cause these symptoms and its good that they are referring you quickly to see someone as hopefully they can start investigating. What I would do now in your shoes is to write a symptoms lists - so date of symptom and description of symptom so that you keep a record of it for when you see the neurologist. Try not to mention to the neurologist that you think it’s ms as doctors and consultants hate patients trying to diagnose themselves. Try and take one day at a time and rest where possible. What tablets did they prescribe you to help you - there’s numerous tablets that work for different ailments so just because they prescribed an anti depressants doesn’t mean that they are for depression but I’m sure the gp explained it to you.

that’s fine i understand. The are tablets are good for nearological problems (my mothers a nurse, she explained this to me). No dr has really suggested i’m stressed which is nice. To be honest i’m not so worried, just curious. 1st week was hard, with the fatige and stuff but i’ve adapted a lot now. All i’ve been told is it could be benign fasciculations but seems to be more to it. I’m accepting of either as i’m not a Dr but wanted opinions from here. My eye problem has completely cleared today after 1 week also which is good,

I learned today that when i put my hands somewhere hot they immidiatly get pins and needles, and they hang around for a minute or so. Is this normal?

It’s fine I understand. It might not sound normal but I’m not too anxios or nervous, just really curious about all that is happening. Thankfully my eye problem has gone today. I spoke to my mother who is a nurse and she said the drugs are normally given for neurological pain as well as depression so all is good. My gp’s been great, he isn’t giving much away he’s just said there is something called benign fasciculations that it could be but there seems to be more going on. MS only really came to mind because it was something mentioned when i had the trigeminal neuralgia, but i never got to see a neaurologist because it just disappeared. Nothing can be as bad as the neauralgia anyway, that was hell :slight_smile: Today i discovered that heat triggers the pins and needles, is that normal for MS? (probably to for BF?). I’m a chef and when i hold my hand abover the grill or a flame the needles immediatly come and last a minute or so then leave once i’m away from the heat.

hmm, my replies are not showing :confused:

It’s fine I understand. It might not sound normal but I’m not too anxios or nervous, just really curious about all that is happening. Thankfully my eye problem has gone today. I spoke to my mother who is a nurse and she said the drugs are normally given for neurological pain as well as depression so all is good. My gp’s been great, he isn’t giving much away he’s just said there is something called benign fasciculations that it could be but there seems to be more going on. MS only really came to mind because it was something mentioned when i had the trigeminal neuralgia, but i never got to see a neaurologist because it just disappeared. Nothing can be as bad as the neauralgia anyway, that was hell :slight_smile: Today i discovered that heat triggers the pins and needles, is that normal for MS? (probably to for BF?). I’m a chef and when i hold my hand abover the grill or a flame the needles immediatly come and last a minute or so then leave once i’m away from the heat.

works now

Hi Mreed, your posts have probably been held for moderation which is why they take a while to come through. Once you have posted a few times they will start to post normally. This is because there has been alot of spam and they are checking that the posts are legitimate. I read that on another post somewhere. As Karina said write all your symptoms etc down. When you get in there your mind tends to go blank. Good luck and I hope you get sorted soon. Be prepared for a possible long haul though as it can take ages to get a diagnosis

Sharon x

How long do they check posts for? I replied ages ago :confused:

So I now always get pins and needles with burning when I go to sleep, wakes me up also. Is it normal? To get It worse at night? My gf’s biddy heat actually makes the burning worse

hi anon (but we know you’re mreed)

it takes a lot of stoicism this diagnosis procedure, so be as stoical as u can

good luck

carole x

I am keeping diary anyway, I think worst of it is over now, eye is fine, energy levels fine. I do have random pains all over the place but it only distracting for the most part. The itching burning and needles can be annoying but for me right now it’s not all the time. The tremors are very slowly getting worse though. But at least right now, I cannot complain compared to what many others are feeling right now :slight_smile:

Hi again - the doctor can prescribe medication for the pins and needle/burning feeling/itching so its worth seeing the gp and seeing what they suggest. That’s why I asked what they had prescribed so far as it could be something that might help but sometimes it takes a few attempts at different doses and with different drugs to help the pains. You sound like you’re being pretty positive about things which is good and also it’s good that you are keeping a list of the symptoms and a diary of them. Sometimes heat makes things worse for people with diagnosed ms but sometimes it’s the opposite and there’s people that struggle with the cold. There’s no real hard and fast rule for ms sufferers as everybody is different and things affect each of us in different ways. Hope you get some answers soon

I learnt to stay possitive from the neauralgia, I thought that would be my life and then it just slowely faded away after many months of hell. I have amytrypraline for the pins and needles, they didn’t hesitate. I think they find me a little fascinatining, they called everyone in to examine me when I came in with twitches everywhere and a tongue like a snake. I took the amytrypraline for 1st time last night, just the lowest dose, it half worked but I probably need to try 20mg. Had the dryest tongue in the world when I woke.