I have just registered so I can ask if anyone has any advice or previous experience of my situation. I will try to keep a long story as short as possible. So 4 years ago I developed a problem with my left eye which includes left eye pain, dizziness & severe aversion to light but I won’t go into it now. It resulted in endless appointments seeing eye specialists before a Opthal-Neurologist ordered a brain MRI scan.
I received the results of this scan 2 weeks ago and was told that there were some white matter lesions seen but were non-specific and very likely small vessel disease. He said he was referring me to Neuro as my trigeminal nerve was inflamed so could be causing the problem with my eye. He said he was quite confident that it was small vessel disease and urged me to see my GP for a cardio-vascular check up.
I arranged this & saw the practice nurse last week for bloods, ECG, BP check etc and my GP has called me today to discuss and has left me very confused and not knowing which Dr to believe. My GP’s exact words were you are 49 not 79, your bloods & ECG are normal as is your BP, you could do with losing a few pounds but can’t we all and basically she said she didn’t think for a second that I had small vessel disease.
We started talking about my medical history over the past few years including extreme fatigue, sciatica, bladder issues, pins and needles in feet and brain fog in which she then said she thought they should now be looking into neurological conditions such as MS. I feel angry to be honest as all of these issues I have seen GP about I have felt very fobbed off usually being told its because I’m peri-menopausal. She also said that some people are told it’s small vessel disease when it’s actually MS and has told me to list any symptoms and discuss when I finally get to see a neurologist rather than just for the eye problem.
Anyway I guess my question is has anyone else here ever been told their lesions were small vessel disease only to be told later on that it’s MS?
Any advice would be very much appreciated.