When I went into hosiptal a few weeks ago I found myself being asked the same old questions… and forgetting to mention relevent symptoms or emergencies I have had.
I said to the consultant “Oh bum, I have all this written down at home” and he immediatly sad “Why didn’t you bring it!?”
The thing is, each person you see as you are pushed about will ask the same things so I think it’s a good idea to have a reminder list for you while you speak… if they notice you are reading off a list they can ask for a copy, or as said above you can offer it to them at the end.
I came home from that hospital visit thinking “Oh no!!! I didn’t tell him about my weird holographic visual thing in 2003 and 2013!!.. Oh and I didn’t tell him when my arm used to go dead when i was a teenager!!!”
And many other things I was magically remembering as I walked home.
I now have a typed out list of headings with lists under them
- Incidents requiring hospital or GP treatment
- Incidents not seen by hospital or GP
- Ongoing symptoms
I then put the year, my age, what the incident was and what happened.
Below is an example of incidents I didn’t see anyone about.
2010 (40) Twitching in eye for three weeks.
2013 (43) Getting ready to go shopping when I get the pinpoint holographic image in my vision, I went to sit on the sofa and it grew so big I couldn’t see anything but the spinning holographic ‘thing’
Below is an example of a couple of incidents I did go to GP or hospital about:
2009 (39) May… Shooting, electric pain through shoulder and arm, pins and needles in fingers. Felt like I had to ‘click’ it back so like an idiot I hung off the door and ‘bounced’ to click it back. Did this for about a week and then went to A&E as it wasn’t getting better. Avulsion fracture from inferior lip of glenoid… I think it was called a Bankart? Not sure if it was the fracture that caused the pain or the ‘hanging and bouncing’ that caused the fracture.
2011 (41) March I find a lump under right ear, December 2011 Pleomorphic Adenoma (Parotid Tumor) removed at Broomfield Hospital.
2012 right eye twitching when I spoke or ate. GP said he would refer me to hospital but never heard anything. Twitching lasted 7 months and then vanished!
and finally below a couple of my lovely ongoing issues:
Base of neck towards right shoulder ‘fizzy electric crawling feeling’ happens on and off, usually lasts for a day or two then goes. Feels like I have electric maggots crawling under my skin. When I scratch it the area feels numb and sunburnt at the same time.
Tinnitus, constant noise in both ears ranges from high pitched tone to low hubbub sound like a bass speaker. Sometimes something clicks and it’s totally muffled but this only lasts about 10 minutes.
I try to keep to things I know might be relevent… for example no point telling him about slipping on the wet kitchen floor and breaking my toe against the dishwahser kind of thing. But anything that ‘might’ be linked I have mentioned…
Now they may look at the list and think “oh ffs” … or they may look at it and think hang on… this and this are odd and shouldn’t happen after XYZ… and lead them on to the path of finding out why over the last year I have gone from oddities to an utter useless not knowing if I am going to be Yzzy today or Old Lady Yzzy.
Be it Lyme, Lupus, Fybro,MS or another tumor I’m at the point where I just want to know wtf is going on so I can DO SOMETHING about it!!