Hello everyone, I am about to start either 6 monthly infusions or the monthly self injection of Kesimpta. I have read that Kesimpta is good but I am concerned as I have read other articles about it. Has anyone used Kesimpta and how hard is it to self inject? Also are the other infusions Ocrelizumab or Ublituximab better than Kesimpta. I was previously on Rituxamb for my arthritis but I cannot carry on with this and they do not use this for MS in the UK.
I started kesimpta in October last year. Was going ok, it’s easy to use, self inject. But by February/march I started getting psoriasis that flares up after the injection, spasticity started in one leg now have it from the waist down and in my left arm, also had two infections . I’ve got another DMT meeting in August to discuss a change. I’m gutted as it did ease some of my residual symptoms to start with. At the end of the day, we are all different in how these medications affect us or deal with this.
Can I ask what other articles have you read and what is it that concerns you?
All treatments carry some side effects and potential risks
Hallo
It’s not difficult at all to self inject, as it’s a sensoready pen rather than syringe. You’ll need a reliable fridge (!) as the jabs need to be stored between 2 and 8 degrees.
I guess it depends on whether you prefer to have a lot all at once, so to speak, or little and often. Ocrevus has a much longer half-life than Kesimpta, hence you only need to take it every 6 months, Kesimpta is monthly, but they both work in very similar ways.
I opted for Kesimpta. I’ve only just started taking it, so can’t speak about the long-term effects, but generally it is thought to be one of the best.
Good luck, whichever you choose
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Thank you for your reply..Noted
Thank you for your reply.
Thank you for the reply.
Hi,
I’ve been on Kesimpta for a year and a half.
The injections are easy. They show you how to do the first one and watch you do it - you can’t really go wrong. You basically just push the pen against you and wait for clicks do indicate when it is done, then dispose of it in the sharps bin they give you. Like you I was a bit apprehensive about this but you get used to it quickly - the whole process only takes a minute.
The great advantage of Kesimpta is that you do not have to go into hospital for it. It is delivered to you. Time spent sitting in hospitals, surrounded by posters asking you not to abuse the staff, can instead be spent doing whatever you like (or at work…). You can also travel with Kesimpta - I’ve taken pens with me abroad. So I’m really happy to be on Kesimpta and not one of the other anti-CD20s.
I had a few side effects from the first dose or two (like a reaction to a vaccine - flu like symptoms). You can reduce the impact of this significantly by taking paracetamol a couple of hours after your first dose - MS nurse should be able to advise further. Since then I’ve been fine with is so far, forget all about it between doses.
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Thank you for the reply.