I have been reading a lot in these groups over the last week. I guess I’d just like to introduce myself and also get feed back on my symptoms and what to expect.
Starting from the beginning (what I think is the beginning) in Oct 21 I woke up with full right side paralysis and very slurred speech. Being the person I am I ignored it for a few hours. I finally went to a&e and they thought I may be having a T.I.A I was admitted to hospital and was given a ct scan and two day after being admitted I was given an MRI. I was supposed to have a contrast MRI but the hospital mucked up and did just a normal one. Anyway I was discharged not knowing exactly what happened.
For months after I had problem with my memory and slow speaking I couldn’t remember words like toaster etc. and then 6 months after that I had problem with swallowing and couldn’t eat for 7 days.
The last couple years I have had urine urgency where I am actually peeing myself and have been to gps many times and finally got referred to the urinary clinic and have been put on meds for that.
I have been having memory problems ever since the first paralysis and I went to my gp to talk about it as it has become a running joke with my kids and husband that I can’t remember conversations after just having them when I used to have such a great memory.
In Oct 23 My gp said they would refer to a neurologist but I need to come in for a check up before they do that. When I went in they checked some movements on my legs and arms and it turned out that I was having right sided weakness again but I had no idea. So they sent me to a&e again. A&e thought it may be a T.I.A again so I was referred to the T.I.A clinic.
I went a week later to the clinic and the stroke consultant sent me for another MRI. No contrast just normal. The results were that I did not have a T.I.A and that when I had been in Oct 21 that was not a T.I.A.
I came out thinking what is going on. My docs referred me to a neurologist and my appointment was given to me for March 24
In November 23 I had an accident where I didn’t lift my right foot fully to go up some wooden stairs at a job and I fell forward banging my head and knocking myself unconscious I was taken to hospital via ambulance but the dr said I was fine and could go home no tests done.
Now before that episode in Oct 21 I never had accidents.
I have had slight balance problems alongside all these incidents as well.
Last week I woke up again feeling slightly off but couldn’t put my finger on what was wrong so I did some tests to check if I had any weakness and I noticed my right leg was weak again. I called 111 and they wanted me to go to a&e.
So down I go again and I sit with a dr and tell him everything from that first incident. He actually listened to me he said he thinks it might be MS but he needs to talk to some other drs.
When he came back he said he had spoken to some neurologists at another hospital and they said it sounds like it could be symptoms of MS or it could be Migraine related paralysis. I do suffer from migraines but I never had a migraine with any of the weakness or paralysis.
The dr in a&e did some more reflex tests and this was what was written on my discharge papers.
Peripheral Nerves: Right leg 4/5 power. Unable to elicit knee, ankle or plantar reflexes. Left leg 5/5 power side NAD. Noted to have weaker shoulder shrug and subtle weakness of the hand noted. Unable to elicit triceps and biceps reflex on right. Left NAD.
DASHING: Slight issue on heel toe walking due to weaker right leg
He said he would contact the neurologist I had an appointment with and see if they could move it up sooner which they did and now I am seeing him on Tuesday next week.
I am not sure how I feel about it. I’m scared in case it is MS but also happy that a dr is finally getting to the problem of what is going on with me for the last couple years.
I think I was just a bit shocked as my discharge papers said DIAGNOSIS: MS
So if you have gotten to the bottom of this long message I’m just wondering what others have gone through while starting this path.
Also thanks for reading