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1st Neuro App Just 3 days away....

Finally seeing a neurologist after having battling symptoms for the last 3/4 years and putting it down to the job I was in. It’s my first appointment and I’m due to go on Monday 18th. GP has said I’ve done well with the 8 week wait. Just wanted to know some of your guys’ first appointments was like? Was the neuro nice, did the have an idea as to what it could have been, etc?

Tsuki xxx

Any tips or advice would be helpful too. I know they was a post soon about it, but still. The more the merrier! xx

My neuro was nice but I was a bit baffled so I didn’t make his job very easy (if I had the first clue about the type of things it could have been, I might have understood what he was looking for! He said he didn’t want to know what other people had said, he wanted to know what I felt was going on with my health. Considering I was hopping mad with my gastroenterologist, I was most concerned at that point that I was underweight, had ulcers when they did a colonoscopy but the gastro was blase about it!

I think I probably did confuse him a bit… frequency/urgency for the bathroom were misunderstood and I had to explain that bladder wasn’t really a problem other than having to wait and it was a bit slow! So we didn’t really click til I started talking about my job at the gym and why it was getting really difficult i.e. didn’t teach my class a few weeks ago cos I couldn’t get out of the bath so told them I was going to take a break til this was out of the way… Him - “do you feel worse if you get hot?”

So, not a trapped nerve or brain tumour then? He assured me he was not expecting to find either.

He then asked to do an exam on me… I was embarrassed as I nearly fell a couple of times! It was only when he enlarged my spinal MRI on screen that I started to understand - he already believed I had MS and started to explain it to me!

My 2nd appointment was a lot easier as there were no crossed wires and I took a list (the best advice I can offer is make a list of the things that trouble you!)

Good luck Tsuki

Sonia x

I agree make a list of what bothers you the most, take someone with you if possible and try and find out plans for if they do tests that are clear. Good luck Axx

[quote=“TsukiUsagi”]

Finally seeing a neurologist after having battling symptoms for the last 3/4 years and putting it down to the job I was in. It’s my first appointment and I’m due to go on Monday 18th. GP has said I’ve done well with the 8 week wait. Just wanted to know some of your guys’ first appointments was like? Was the neuro nice, did the have an idea as to what it could have been, etc?

Tsuki xxx

[/quote] Hello Tsuki. My neuro is a lovely scottish guy. I was originally referred to him with chronic headaches /migraine…MS never entered my head but that is my diagnosis. He asked me a lot of questions about my past and present symptoms, did some neuro tests, then booked me for mri scan. Write a list of all your symptoms…leave a copy with neuro for your notes. Take someone with you if you can for support. Take your time and don’t allow yourself to be rushed.

I have a list ready and am taking someone else with me. I also have questions on the bottom and some extra tid bits in case there is more info needed on some of the symptoms. Starting to think the depression and anxiety I had was due to my fatigue rather than the other way around since writing down my symptom list.

I also have the whole issue with needing bathroom for wee. Seen a specialist over it many moons ago and I got told it was something else, just the issue has never got better. Only when I drink coffee do I seem to tell when I have a full bladder.

I also want to be copied into any notes exchanged between them and my GP.

Thanks very much for the support!! xxx

You are doing right by noting your symptoms down, taking someone with you and asking for copies!! I am told a lot of neuros do not have a good bedside manner. Mine certainly didn’t but i am told he is a very clever man and extremely good at what he does. Looking back, i was scrabbling round for answers to his questions when i would have been better asking him exactly what he wanted to know. you will be fine! I went along expecting to get an answer there and then and was very deflated afterwards. I would say to go with an open mind. My GP today asked if it was getting me down (eg. Was i becoming depressed). I don’t think i am down, it is more a frustration as i can’t do what i used to do and everything takes me such a long time. I am sure you can relate. let us know how it goes, won’t you? Xx

Can’t add any advice but good luck!

Good luck x

I’m ready not to find anything out or a diagnosis yet. Thankfully this forum helped me understand exactly what occurs when you see a neurologist. Without it I would have been completely in the dark.

Thanks everyone for the luck, I will let you know how it goes!

Tsuki xxx

I can’t add any advice, but just wanted to wish you luck. My Neuro was lovely and was the first doc in a long time not to make me feel as if I was a malingering moaner!

Try and stay calm, answer his questions as fully as you can (some may seem very bizarre, but they all have a relevance) and ask for clarification of anything that doesn’t make sense.

Good luck. Let us know how you get on xx

Thinking of you today!! don’t forget to let us know how you get on xx

Sending positive vibes Tsuki! Best wishes :heart:

Hope it goes ok today xxx

Thanks guys… I started a new post about it. Forgot I still had this one going! Ooops! xx

I had my first appointment a short while ago. I agree with the others, make a list. Also take a notepad and pen to make your own notes thoughout the appointment.

My neurologist was really nice and made sure I undestood exactly what he as telling me. I was diagnosed officially with MS a week ago. he was very friendly and available throughout the whle process.

Whilst I am sure you will be nervous, like myself, please be honest and describe everything you have experienced.

Good luck with the appointment!

K