I was diagnosed with Secondary Progressive MS in April, following 6 years of trying to get a diagnosis.
There has been a big shift in the last year with my mobility. I have to use a stick now all the time, not just when I am fatigued (which seems a daily occurrence now).
The consultants say I probably had RRMS, following optic neuritis in 2011 and previously a dead arm in 2007. My question is, will I get relapses with good and bad days, or will I just gradually get worse as time goes on and feel pretty much the same on a daily basis?
I have tried to get a personal independence payment (old DLA), but the DWP has said that I have not been awarded this as I have more good days than bad!!! It doesn’t seem like that to me. Everyday is a struggle and I really have to make an effort to go anywhere or do anything.
Can you let me know your experiences.