I have had MS for 22 years. About 6 years ago I was told that it was SPMS. I filled my PIP in and was awarded high rate for both mobility and care. Beginning of 2019, I saw another neurologist and she said that my disease is active RRMS with progression due to the length of time I have had the disease. As these letters, were flying around, my dad was taken seriously ill and died just 10 days later. I have only recently read these letters - do I need to tell PIP? Any advice would be welcome.
it does frustrate me that they have to call it RRMS, SPMS or PPMS as they affect everyone differently so surely just having MS should be enough.