Hi everyone, check in just about daily but haven’t posted for a while. I am SP and have been for quite a few years and have had a noticeable major deterioration in the last few months.Now can’t walk, losing use of my hands, becoming more disabled by the day. It seems everyone on this site is ether on DMD’s or no way as bad as me. I do know that everyone is different but I am feeling so alone and do feel I’m now in the final stages.This isn’t going to get any better. Doing all the positive stuff like physio, mindfulness, taking the relevant meds, talking to my ms nurse but nothing seems to be helping. I know this only gets worse but this is ridiculous. How much longer and how much more deterioration?
I could go on and on but don’t think it will make any difference.