I was diagnosed last month with Secondary Progressive, and told it’s likely that I started out with MS about 30 years ago.
My consultant was very thorough, and did talk about treatment but suggested that treatment wasn’t a good idea because I also have Pulmonary Fibrosis. I’m also already on pain meds; Carbamazapine, Gabapentin, Amitriptyline as well as Fentanyl patches and Oramorph for other conditions.
What I am feeling is confused. I have multiple symptoms, witch have an impact on my mobility, and dexterity.
At the end of my appointment I was told that if I had any problems I should contact the nursing team. I tried this, and yes I was given an appointment in NOVEMBER!
I’m still not convinced that I don’t want to use drugs to help me but the people who are apparently in charge of this I have to wait to see for most of the year to even discuss.
Waiting until November for another appointment must be really tough. Just know that you’re not alone in this, and our community is here to support you