Anyone else dealing with a disease that dosent show its self but symptoms you have.
I have had m.s five years now having not one relapse my doctor calls it a name but i cant remember the name of m.s i have is active secondary at the mo and just have really bad symtoms i.e numb arms legs and i spend my day like.a chicken without a head cannot decide or do anything constructive annoying really. Just wanted to know who else is like this and to.see that im not alone. Aometimes i wished i had asked for rrms lol look forward to hearing from you
Oh leehawk1972, I have secondary progressive, my MS nurse says mine comes with periods of activity, others say relapse. Anyway whichever it is, it’s not not good, so my heart goes out to you. I have a whole host of symptoms, from nerve pain, fatigue, balance issues, eye problems, bladder and now my bowel has joined in GRrrr, I’m in a eletric wheelchair in my home, it stinks, so you are so not not on your own, MS is a ball ache, but will I give in…NO, no way, we have to carry on and make the best life we can, it’s all we can do, so chin up and try to keep smiling.
Take care and all the best.
Jean x
1 Like
NOT give in
1 Like
Hi leehawk1972
I have Active Secondary Progressive MS too - I’m on Plegridy (for now) which I hope will slow things down some. My symptoms, for the most part, affect the left side - head to toe, numbness, tingling pins and needles, leg cramps, hand cramps, the ‘lovely’ ms hug puts in an appearance from time to time, bladder issues (which have improved quite a bit since the plegridy started), balance and cog-fog.
Have you tried meditation - if not, give it a go. Also, are you eligible for DMT for the MS?