Sorry if there are loads of similar posts. I’m 44, F. I’m as sure as I can be that my symptoms are MS. Of coure I know not to self-diagnose from Dr Google but all my symptoms point in the same direction, being realistic it seems obvious and I think it would be a bit weird if MS didn’t get diagnosed. I have got a neurologist appointment although not for 2 months and they won’t see me sooner. I am absolutely scared out of my wits and as I sit here typing with a finger which has been numb for several days and a numb foot and a tingling arm - what can I do to help myself before any diagnosis or treatment? I mean in terms of lifestyle - sleep, diet, etc? Does anything help with this disease except the DMTs people talk about? Should I try to learn about it (from reputable sources) or avoid online browsing? How do you all keep positive and proactive about managing it? Apologies to be asking this pre-diagnosis but I’m highly doubtful that it coule be anything else. Thanks everyone
Hi Zani, I and expect everyone else on this forum remember that horrible period of waiting for a diagnosis ( being ‘in limbo’). My sympathies to you. Way back when I was diagnosed I found a book ( remember them?) called overcoming MS which I found very helpful and encouraging. The title is a bit misleading and the website talks about ‘living well with MS’ using diet, exercise, sunlight ( if you are in a sunny place) or vitamin D and mindfulness/ meditation ( plus whatever treatment you are on). Have a look at the ‘OMS website’. The book was written by an Australian professor of medicine who has MS himself and who now also oversees the website plus a range of videos and events . It’s no cure but is about keeping your body and brain as healthy as possible and supporting both in dealing with MS and its effects
Hi, thanks so much for this, I have ordered the book and trying to figure out how I can follow the MS diet!! Considering I eat tons of dairy ( instructions from my dietician because I have osteoporosis) this is going to be an interesting task
Thank you!
That’s one option, but there is no such thing as gold standard advice on what to eat. Truth is, no one knows for sure so we must all choose a path that suits us personally.
Here’s an alternative approach offered by a UK based neurologist known of and respected by many of us. It is what I try to do, pretty much. I have a history of osteopenia and as I prefer to get my nutrients from real whole food rather than out of a pill bottle, it suits me well. I’m definitely not giving up dairy.
I gave up dairy a long time ago. Not sure if it’s made a difference but I now don’t miss it and quite enjoy my Oat ‘Milk’ and soya cream ( do miss a good strong cheddar or Stilton).
There is an interesting bit on fish and diet in the MS Society news pages . I eat quite a lot of fresh fish ( and with things like tinned sardines and salmon as well you get a fair bit of calcium)