scared, waiting, what can i do while i wait?

Sorry if there are loads of similar posts. I’m 44, F. I’m as sure as I can be that my symptoms are MS. Of coure I know not to self-diagnose from Dr Google but all my symptoms point in the same direction, being realistic it seems obvious and I think it would be a bit weird if MS didn’t get diagnosed. I have got a neurologist appointment although not for 2 months and they won’t see me sooner. I am absolutely scared out of my wits and as I sit here typing with a finger which has been numb for several days and a numb foot and a tingling arm - what can I do to help myself before any diagnosis or treatment? I mean in terms of lifestyle - sleep, diet, etc? Does anything help with this disease except the DMTs people talk about? Should I try to learn about it (from reputable sources) or avoid online browsing? How do you all keep positive and proactive about managing it? Apologies to be asking this pre-diagnosis but I’m highly doubtful that it coule be anything else. Thanks everyone :slight_smile:

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Hi Zani, I and expect everyone else on this forum remember that horrible period of waiting for a diagnosis ( being ‘in limbo’). My sympathies to you. Way back when I was diagnosed I found a book ( remember them?:grinning_face_with_smiling_eyes:) called overcoming MS which I found very helpful and encouraging. The title is a bit misleading and the website talks about ‘living well with MS’ using diet, exercise, sunlight ( if you are in a sunny place) or vitamin D and mindfulness/ meditation ( plus whatever treatment you are on). Have a look at the ‘OMS website’. The book was written by an Australian professor of medicine who has MS himself and who now also oversees the website plus a range of videos and events . It’s no cure but is about keeping your body and brain as healthy as possible and supporting both in dealing with MS and its effects

Hi, thanks so much for this, I have ordered the book and trying to figure out how I can follow the MS diet!! Considering I eat tons of dairy ( instructions from my dietician because I have osteoporosis) this is going to be an interesting task :smiley:
Thank you!

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That’s one option, but there is no such thing as gold standard advice on what to eat. Truth is, no one knows for sure so we must all choose a path that suits us personally.

Here’s an alternative approach offered by a UK based neurologist known of and respected by many of us. It is what I try to do, pretty much. I have a history of osteopenia and as I prefer to get my nutrients from real whole food rather than out of a pill bottle, it suits me well. I’m definitely not giving up dairy.

I gave up dairy a long time ago. Not sure if it’s made a difference but I now don’t miss it and quite enjoy my Oat ‘Milk’ and soya cream ( do miss a good strong cheddar or Stilton).

There is an interesting bit on fish and diet in the MS Society news pages . I eat quite a lot of fresh fish ( and with things like tinned sardines and salmon as well you get a fair bit of calcium)

https://www.mssociety.org.uk/research/latest-research/latest-research-news-and-blogs/behind-headlines-does-eating-fish-reduce-ms-progression

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