HI, sorry if this drags on a bit:
I wrote on this site about 8 month ago about issues I was having and tried to seek some advice. A year and a half ago I went to the docs as I had a painful shin bone for a few weeks, whilst sitting in the waiting room I got really severe pins and needles down my leg/bone. When I went into see the doctor I told them about this and they sent me for a leg xray which was clear… a few days after this I started to feel faint pains in my chest which over the course of 48 hours got worse. Ive never felt pain like it it was like having contractions across my chest this lasted 3 days and were so painfull I was screaming and could not sleep, I went to hospital and they put me on heart monitors, I told them it was as though my muscles were contracting and I was fairly confident my heart was fine. They just said my heart was ok and sent me in my way without even looking into what happened! Not long after this I had pain behind my right eye and severe pain in my face around my cheek as if it was on fire.
I went to see a doc who tried to dismiss me until I demanded a neuro appointment, I went to see the neuro in October 2016 and he done toe pricks etc and said he didn’t have many concerns however would send me for an MRI for ‘peace of mind’ I went for the MRI and got a letter saying there is a handful of white matter hyperintensive lesions on my brain, border line significant for age… he sent me for a further scan on my brain in March this year the images are the same and he wants me to have another in 6 months.
Since the last time I seen the neuro there has been so many things happening to me which cant be explained but getting an actual appointment with him is near impossible, and when I try discussing these things with the doctors they just say that this is not MS and I need to fix my thought process as im causing the issues and pain by making my brain think there is something wrong with me……even though I have actually woke myself up in agony whilst in a deep sleep…
All the pains and strange issues I have are down my left side only but the face and eye pain is always on the right
A few examples of issues that are happening to me are :
Tingling shin and ankle bone
I have two numb toes which have never came back been like this for around 7 month or maybe slightly longer
Cold night sweats
I am slightly concerned that the neuro is sending me for brain scans alone and not scanning my spine as these issues used to come and go but for 4 months they have been constant even with 6 gabapentin per day. Does anyone know if it would be beneficial to have a brain and spine scan? What im yet to say is my mam had MS and it was primary progressive she was 46 when she developed it and passed away through complications caused by the disease two years ago at 58. I am 33 now, my mam had tests for years and they couldn’t work out what was wrong and by the time they figured it out she was already paralysed. I think because of this the doctors think im over sensitive and paranoid by MS and like im hell bent on a diagnosis, which I am not im just really scared and concerned. I know this is not in my head but feel like everyone is determined to just tell me to go away and I am mad and that the ways which my pain comes dosnt fit the pattern of MS
For example: u don’t get localised face pain just across ur cheek bone, it would be the entire side of the face….
You cant just get a couple of numb toes it would be all of them…
you don’t get chest pains in MS
ive read these thing have happened to people yet the doctors just keep saying im imagining it all.
End of the day it still may not be MS and great if it isn’t! but I don’t just want to be told im mad and have nothing looked into. I don’t really know what im asking tbh but I just would like people with MS to advise me of weather im overthinking these things or If I should persist.
Thank you all for your time