For all of us with SPMS...
The next MS Trust chatroom is tomorrow (16th May) and is about managine the transition to SPMS
If you can't spend all day sitting at the computer - I for one can't concentrate anywhere near the 3 hours each session takes - a transcript is always available sometime after the chatrooms. I joined in a chatroom about fatigue just before I finally 'gave in' and went off sick. It was an eye opener, and helped me realise what had been obvious to everyone around me. I was really fighting hard to cope, and that chat made me realise that no one could cope with what was happening to me. I was just being too strong for my own good.
See you there maybe? If my home broadband stays 'awake' too!
Secondary progressive MS - managing the transition
16 May 2012
Understanding and coping with the change from relapsing remitting to secondary progressive MS can be challenging. With fewer relapses and disability gradually increasing, approaches to treatment and managing symptoms can change. For some people this can feel like being diagnosed a second time with a new range of unknowns and uncertainties.
On 16 May, the next chatroom will explore this topic and offer the chance to ask questions of health professionals or to share thoughts with other people with MS.
Morning session - 10am-1pm
- Jeremy Chataway, Consultant Neurologist
- Susan Hourihan, MS Occupational Therapist
Afternoon session - 1pm-4pm
- Wendy Hartland, MS Nurse
- Stephen Wilson, Cognitive Behavioural Psychotherapist
Evening session - 4pm-7pm
- Alison Smith, Rehab Specialist Nurse
- Vicki Matthews, MS Nurse
There is no need to register and information on how to join the chatroom will be posted on this page on the day of the session.
If you are unable to make it to the chatroom on the day, you can send your questions or comments in advance to email@example.com
To receive an email reminder about upcoming chatroom sessions, email firstname.lastname@example.org