Having a few symptoms that don’t fit ‘typical’ RRMS. The beginnings of arthritis (both ankles simultaneously), constant high temperature / sweating, even more fatigue, strange ear pressure etc. etc.
I’ve been putting it all down to MS until a colleague told me about her brother-in-law who had a small tumour in his ear and the first symptom was this weird pressure. Saw GP, referred to ENT and clear Rheumatoid arthritis blood test. Ear tubes checked - all clear. Hearing as good as a teenager’s! He ordered a contrast MRI which showed no tumour (phew) but something called Normal Pressure Hydrocephalus (nasty, can be linked to dementia / Parkinson’s…).
Have been searching symptoms and main options seem to be Chronic Lyme Disease (tick bite in 2005) or Lupus. Have now been referred to both Rheumatology and Neurology to try to find out what’s going on.
Sorry for long post. Just really want to know if anyone has come across anything like this before or has any thoughts.
Thanks in advance.