Thanks for the replies. Sorry, I’ve been remiss in not answering you all.
I think the letter may have been removed because it wasn’t so much a letter as a really long, very biased and aggressive document (Geoff’s comment is one example of the bias) that basically attacked the MSS, lots of eminent neurologists and researchers, pharmaceutical companies and others, suggesting that they were deliberately stopping people from getting treatment for some nefarious reason. It was also very un-MSer-friendly so a lot of people on here would have struggled to read it. I wouldn’t be surprised if it contained several breaches of the libel laws too actually!
As whammel said, there are trials going on already; waiting for the results seems eminently sensible. And I completely agree, the idea that neurologists etc don’t want us to be well is a conspiracy theory way too far!
I wonder if that’s one of the reasons that interest in the theory is waning (Belinda’s link)?